目的 分析疾病不确定感、乐观倾向对重症肌无力(Myasthenia Gravis，MG)患者自我健康管理的影响。方法 2020年12月～2023年7月，选取MG患者97例，采用中文版疾病不确定感量表(Mishel Uncertainty in Illness Scale，MUIS)、生活定向测验修订版(Revised Life Orientation Test，LOT-R)、成年人健康自我管理能力测量表(Adult Health Self-Management Scale，AHSMSRS)评估疾病不确定感、乐观倾向、自我健康管理，分析MG患者MUIS、LOT-R评分与AHSMSRS评分的相关性，以及乐观倾向在疾病不确定感与自我健康管理中介效应。结果 MG患者MUIS、LOT-R、AHSMSRS评分分别为(101。18±13。76)分、(16。03±4。13)分、(115。74±15。24)分。经 Pearson 分析，MG患者MUIS各维度评分及总分与AHSMSRS各维度评分及总分呈负相关(P＜0。05)，LOT-R评分与AHSMSRS各维度评分及总分呈正相关(P＜0。05)。使用Bootstrap抽样检验法进行中介效应研究，AHSMSRS总分=＞LOTR评分=＞MUIS总分，此条中介路径存在效应。结论 MG患者乐观倾向较低，在疾病不确定感和自我健康管理之间有中介作用，需提高患者的乐观倾向，从而降低疾病不确定感，提高自我健康管理。
The impact of disease uncertainty and optimistic tendencies on self health management in patients with myasthenia gravis
Objective Analyze the impact of disease uncertainty and optimistic tendencies on self health man-agement in myasthenia gravis(MG)patients.Methods From August 2020 to July 2023,97 MG patients were se-lected and evaluated for disease uncertainty,optimistic tendencies,and self health management using the Chinese version of the Mishel Uncertainty in Illness Scale(MUIS),Revised Life Orientation Test(LOT-R),and Adult Health Self Management Scale(AHSMSRS)The correlation between LOT-R score and AHSMSRS score,as well as the medi-ating effect of optimistic tendencies on disease uncertainty and self health management.Result The MUIS,LOT-R,and AHSMSRS scores of MG patients were(101.18±13.76),(16.03±4.13),and(115.74±15.24),respectively.According to Pearson analysis,the MUIS scores and total scores of MG patients were negatively correlated with the AHSMSRS scores and total scores(P＜0.05),while the LOT-R score was positively correlated with the AHSMSRS scores and total scores(P＜0.05).Using the Bootstrap sampling test method for mediating effects research,AHSMSRS total score=＞LOTR score=＞MUIS total score,this mediating path has an effect.Conclusion MG patients have a low tendency for optimism,which mediates between disease uncertainty and self health management.Therefore,it is nec-essary to improve the patient's optimism,thereby reducing disease uncertainty and improving self health management.
Myasthenia gravisDisease uncertaintyOptimistic tendenciesSelf health managementImpact
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