首页|家庭赋权干预对慢性肾脏病患儿心理状态及家属疾病不确定感的影响

家庭赋权干预对慢性肾脏病患儿心理状态及家属疾病不确定感的影响

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目的 研究自身家庭赋权干预对慢性肾脏病患儿心理状态及其家属疾病不确定感影响。方法 选择武汉大学人民医院2019年8月-2022年8月收治的800例慢性肾脏病患儿及其主要照护人为研究对象,将患儿随机分为观察组和对照组各400例(每例包含1名患儿及1名主要照护人)。对照组研究对象入组后仅采用健康宣教,观察组在对照组基础上加入家庭赋权干预,观察两组研究对象干预前后儿童焦虑障碍自评量表(SCARED)、儿童抑郁障碍自评量表(DSRSC)评分,及其主要照护人疾病不确定感家属量表(MUIS-FM)、照顾能力量表(FCTI)、简易应对方式量表(SCSQ)评分。结果 干预后观察组患儿SCARED、DSRSC得分为(12。75±2。52)分、(8。22± 1。70)分,均显著低于对照组[(14。77±2。37)分、(9。56±1。48)分](P<0。05);干预后观察组患儿主要照护人MUIS-FM量表中不确定性、复杂性、信息缺乏、不可预测性得分为(30。25±2。86)分、(20。18±1。94)分、(9。27± 1。71)分、(8。05±2。14)分,均显著低于对照组[(34。04±3。15)分、(23。26±1。70)分、(10。99±1。84)分、(10。37± 2。09)分](P<0。05);干预后观察组患儿主要照护人SCSQ量表积极应对得分为(22。37±4。05)分,高于对照组[(19。61±3。58)分](P<0。05),而消极应对得分为(9。06±2。15)分,低于对照组[(10。37±2。70)分](P<0。05);干预后观察组患儿主要照护人FCTI量表中适应照顾角色、应变及提供协助、处理个人情绪需要、评估家人及社区资源、调整个人生活与照顾需求为(3。28±0。85)分、(2。91±0。62)分、(2。77±0。85)分、(3。26±1。09)分、(3。07± 0。85)分,均显著低于对照组[(4。33±1。04)分、(4。24±1。07)分、(3。83±0。99)分、(5。17±1。78)分、(4。11±1。36)分](P<0。05)。结论 家庭赋权干预可在一定程度上改善慢性肾脏病患儿自身不良心理状态,同时还有利于照护者改善疾病不确定感,以积极的方式应对问题,更好地提升其照护能力。
Effects of Family Empowerment Interventions on the Psychological State of Children with Chronic Kidney Disease and the Uncertainty in Illness among Their Families
Objective To study the effects of family empowerment intervention on children with chronic kidney disease(CKD)on their own mental state and their families disease uncertainty.Methods A total of 800 children with CKD and their main caregivers admitted to our hospital from August 2019 to August 2022 were selected as study subjects and randomly divided into the observation group and the control group with 400 patients in each group(each containing 1 child and 1 main caregiver).After enrollment,only health education was used in the control group,and the observation group added family empowerment intervention on the basis of the control group,and observed the scores of the Children's Anxiety Disorder Self-rating Scale,SCARED,and Child Depressive Disorder Self-rating Scale(DSRSC),as well as the Family Rating Scale for Disease Uncertainty of Primary Caregivers(MUIS-FM),Caring Ability Scale(FCTI),and Ease of Coping Scale(SCSQ)before and after the intervention.Results The scores of SCARED and DSRSC in the post-intervention observation group were(12.75±2.52)and(8.22±1.70),which were significantly lower than those in the control group(14.77±2.37)and(9.56±1.48)(P<0.05).The scores of uncer-tainty,complexity,lack of information and unpredictability in the MUIS-FM scale of the primary caregivers in the post-intervention observation group were(30.25±2.86),(20.18±1.94),(9.27±1.71)and(8.05±2.14),which were significantly lower than those in the control group(34.04±3.15),(23.26±1.70),(10.99±1.84),and(10.37± 2.09)(P<0.05).After the intervention,the positive response score of the primary caregiver SCSQ scale was(22.37± 4.05)higher than that of the control group(19.61±3.58)(P<0.05),while the passive response score was(9.06± 2.15)and lower than that of the control group(10.37±2.70)(P<0.05).After the intervention,the main caregiver FCTI scale of the children in the observation group was to adapt to the role of care,respond to and provide assis-tance,deal with personal emotional needs,assess family and community resources,and adjust personal life and care needs were(3.28±0.85),(2.91±0.62),(2.77±0.85),(3.26±1.09),and(3.07±0.85),which were significantly lower than those in the control group(4.33±1.04),(4.24±1.07),(3.83±0.99),(5.17±1.78),and(4.11±1.36)(P<0.05).Conclusion Family empowerment intervention can improve the poor mental state of children with CKD to a certain extent,and also help the caregivers to improve the disease uncertainty,cope with the problem in a posi-tive way,and improve their care ability.

Chronic kidney diseaseChildrenFamily members feel uncertain about illnessFamily empo-werment interventionsMental state

刘晓琴、魏莎、石钰琳、金琼琼、张婷、陈颖、刘亚琴

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武汉大学人民医院儿科,湖北 武汉,430060

慢性肾脏疾病 儿童 家属疾病不确定感 家庭赋权干预 心理状态

湖北省自然科学基金项目

2020CFB611

2024

中国社会医学杂志
华中科技大学同济医学院

中国社会医学杂志

CSTPCD
影响因子:1.193
ISSN:1673-5625
年,卷(期):2024.41(2)
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