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出生缺陷防治服务中的伦理问题及对策

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出生缺陷疾病是导致婴幼儿及儿童死亡和先天残疾的重要原因,对出生缺陷疾病实施综合防治是国际社会普遍采取的策略.但与此同时,在出生缺陷防治的过程中也产生了一些突出的伦理问题.充分辨析其中的伦理风险、推动出生缺陷防治领域伦理规范的建立和实施的重要性和紧迫性,己得到妇幼健康临床工作者和相关领域研究者的高度关注.本文分析出生缺陷防治工作中的主要伦理困境,提出目前可以用于出生缺陷三级预防实践的伦理原则,以推动我国出生缺陷防治工作的伦理治理.
Ethical issues and solutions in prevention and treatment services of congenital disorders
Congenital disorders are a significant cause of infant and child mortality and congenital disabilities,and implementing comprehensive prevention and treatment strategies for congenital disorders has become a wide-ly adopted approach by the international community.However,a number of ethical issues have also arisen in the implementation of prevention efforts.The importance and urgency of thoroughly analyzing the ethical risks in-volved and promoting the establishment and implementation of ethical standards in the process of prevention and treatment of congenital disorders have been highly concerned by clinicians in maternal and child health and ex-perts in related research fields.This article analyzes the main ethical dilemmas in the prevention and treatment of congenital disorders and proposes ethical principles that can currently be used in the practice of three-level preven-tion of congenital disorders,so as to promote the ethical governance of prevention and treatment efforts in China.

congenital disordersprevention and treatment servicesethical issues

罗丹、王晓敏、刘星、王华、方俊群、余意

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中南大学湘雅公共卫生学院,长沙 410006

中南大学湘雅三医院,长沙 410013

中南大学湘雅医院,长沙 410008

湖南省儿童医院,长沙 410007

湖南省妇幼保健院,长沙 410008

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出生缺陷 防治服务 伦理问题

湖南省出生缺陷防控质量保障体系研究资助项目

2019SK1011

2024

广西医科大学学报
广西医科大学

广西医科大学学报

CSTPCD
影响因子:0.788
ISSN:1005-930X
年,卷(期):2024.41(6)