Parental care experience of children with spinal cord injury:a qualitative study
Objective To deeply understand the parental care experience of children with spinal cord injury(SCI),so as to provide a reference for promoting their physical and mental health.Methods A phenomenological research method was used to select 11 parents of children with SCI by using purposive sampling for semi-structured interviews,and the Colaizzi analysis was utilized to refine themes.Results Four themes were extracted:bearing the burden of caring,complex mental experience,adapting role change and improving caring skills,desiring family and social support.Conclusion Parents of children with SCI suffer from heavy care bur-den and negative psychological emotion,so medical staff should pay attention to assessing their care experience,and provide posi-tive psychological adjustment and appropriate social support when necessary,so as to alleviate their care burden and improve their mental health.
spinal cord injurychildrenparentscaregiverscare experiencecare burdennegative emotionqualita-tive study
万方数据
维普
