慢性肾脏病青少年过渡期准备体验的质性研究
The lived experience of transition readiness among adolescents with chronic kidney disease:a qualitative study
杨乔越 1余雅琪 1余艮珍 2罗颖 2胡婉梅 2宋文帅 1傅茂菱1
作者信息
- 1. 华中科技大学同济医学院附属同济医院儿科(湖北 武汉,430030);华中科技大学同济医学院护理学院
- 2. 华中科技大学同济医学院附属同济医院儿科(湖北 武汉,430030)
- 折叠
摘要
目的 探讨慢性肾脏病青少年过渡期准备的真实体验,为构建过渡期准备干预方案提供参考.方法 基于健康行为改变整合理论制定访谈提纲,采用现象学研究方法,对13例慢性肾脏病青少年进行半结构化访谈,运用主题分析法分析资料、提炼主题.结果 慢性肾脏病青少年过渡期准备的真实体验可归纳为对过渡期准备的认知不足、对疾病和症状的辨识和自我管理能力有待提升、影响顺利过渡的因素3个主题.结论 医护人员应提供个性化过渡教育,辅以家庭参与,促进青少年心理社会适应,完善过渡医疗体系,以促进慢性肾脏病青少年顺利过渡.
Abstract
Objective To explore the lived experience of transition readiness in adolescents with chronic kidney disease(CKD),and to provide reference for developing transition readiness intervention program.Methods A qualitative phenomenological research design was utilized.Based on the Integrated Theory of Health Behavior Change,the interview protocol was crafted,then individual inter-views were conducted among a purposeful sample of 13 adolescents with CKD.Content analysis procedures were applied to verba-tim transcripts obtained during the semi-structured interviews.Results Three main themes emerged:inadequate awareness of transi-tion readiness,lacking ability to recognize disease symptoms and self-management,and factors affecting transition.Conclusion Healthcare professionals should provide personalized transition education,encourage family involvement,promote adolescents'psychosocial adaptation,and improve the transition healthcare system,thus to achieve successful transition from pe-diatric to adult care.
关键词
青少年/慢性肾脏病/过渡期准备/过渡期医疗/健康行为改变整合理论/自我管理/质性研究Key words
adolescents/chronic kidney disease/transition readiness/transitional health care/Integrated Theory of Health Behavior Change/self-management/qualitative research引用本文复制引用
基金项目
华中科技大学同济医学院附属同济医院科研项目(2022C09)
出版年
2024
NETL
NSTL
万方数据