肿瘤患儿照护者对选择长期静脉导管置管决策体验的质性研究
The experience of decision-making regarding placement of long-term central venous catheters:a qualitative study of caregivers of children with cancer
杨阳 1刘美 1冯丽娟 1杜美晨 1曾铁英2
作者信息
- 1. 华中科技大学同济医学院附属同济医院 肿瘤科(湖北武汉,430030)
- 2. 华中科技大学同济医学院附属同济医院 护理部(湖北武汉,430030)
- 折叠
摘要
目的 探讨肿瘤患儿照护者对选择中心静脉置管的决策体验,为制定决策辅助策略提供依据.方法 采用现象学质性研究方法,以目的抽样法选取肿瘤患儿照护者17人进行半结构式访谈,采用Colaizzi资料分析法对访谈资料进行分析.结果 共提炼出3个主题和6个亚主题,分别为决策前积极准备与消极应对共存(迷茫无助、积极应对)、决策中医生主导与共享决策共存(医生主导决策、共享决策)、决策后获益庆幸与反思后悔共存(获益庆幸、后悔担心).结论 肿瘤患儿照护者在选择静脉导管置入时的决策体验复杂、决策参与度不高;医护人员应关注其参与共享决策意愿及影响因素,并予以针对性干预,提升其共享决策参与意愿.
Abstract
Objective To explore the experience of decision-making regarding placement of central venous catheter among caregivers of children with cancer,and to provide evidence for decision-making support.Methods Using phenomenological qualitative design,purposive sampling was utilized to select 17 caregivers of children with cancer for semi-structured interviews.Data were analyzed using conventional content analysis method.Results Three themes and six sub-themes emerged:coexistence of active preparation and passive coping before decision-making(confusion and helplessness,positive coping),coexistence of doctor-led and shared deci-sion-making(doctor-led decision-making,shared decision-making),coexistence of benefits and regrets after decision-making(be-nefits and gratitude,regrets and concerns).Conclusion Caregivers of children with cancer have complex decision-making experience and low participation in decision-making regarding placement of central venous catheter.Medical staff should pay attention to their willingness to and factors associated with participation in shared decision-making,and provide targeted interventions,aiming to en-hance caregivers'willingness to participate in shared decision-making.
关键词
肿瘤患儿/中心静脉导管/照护者/父亲/母亲/决策/共享决策/质性研究Key words
children with cancer/central venous catheter/caregivers/father/mother/decision-making/shared decision-making/qualitative research引用本文复制引用
基金项目
华中科技大学同济医学院附属同济医院科研项目(2022D11)
中华护理杂志社静脉治疗护理专项科研项目(2023)(ZHHLZZS-202343)
出版年
2024
NETL
NSTL
万方数据