Objective To enrich a preliminary theoretical model of family caregivers'experience of caring for patients at the end-of-life stage.Methods Six English databases and five Chinese databases were systematically searched for the studies of grounded theory interpreting the fami-ly members'experience of caring for patients at the end-of-life stage published before March 2023.The 14 included studies were synthesized by using the methods of Thematic Expansion and Theory-generating Meta-synthesis.Results Eight core components of the theoretical model de-veloped in the previous studies have been adjusted and extended.The theoretical model consisted of seven core components:motivation,the awareness of dying,companionship,emotional experience,life changes,needs,consequences and goals.Several core components are influenced by the caregivers,patients,families,the healthcare system,and societal factors.Conclusion Nurses could provide tailored-support based on the theoretical model of family caregivers'experience of caring for patients at the end-of-life stage,and help family caregivers to cope with end-of-life caregiving tasks at multiple levels of cognition,spirit and behavior.
关键词
家庭照顾者/临终患者/生命末期/临终照护/照顾体验/家庭支持/优逝
Key words
family caregiver/dying patients/end-of-life stage/hospice care/caring experience/family support/good death
维普
万方数据