老年肺癌患者照顾者居家照护网络支持性服务方案构建及可行性研究
Development and feasibility of an internet-based supportive intervention for family caregivers of older patients with lung cancer
聂奕轩 1金学勤 2宋娟 2谢砚辞 1李爱仙 2周守志 2练志梅 1杨雪芳1
作者信息
- 1. 南京医科大学附属苏州医院护理部(江苏 苏州,215001)
- 2. 江苏大学附属昆山医院护理部
- 折叠
摘要
目的 构建老年肺癌患者照顾者居家照护网络支持性服务方案,并评价其临床可行性.方法 以二元应对理论为指导,采用文献、专家函询内容分析等方法开发老年肺癌患者照顾者居家照护网络支持性服务方案.招募21对老年肺癌患者及照顾者进行可行性研究.结果 方案包括健康保健信息支持、照护技能支持、社会与工作支持、心理与情感支持、交流沟通支持5个一级指标、20个二级指标及57个三级指标.方案的招募率71.4％,留存率80.0％,依从率(90.4±10.6)％,方案接受度得分率96.1％.干预42 d后患者支持性照护需求总分及照顾者综合需求总分显著低于干预前(均P＜0.05);夫妻二元应对总分较干预前显著提高(均P＜0.05).结论 老年肺癌患者照顾者居家照护网络支持性服务方案具有可行性,但应用效果仍需大样本随机对照试验加以验证.
Abstract
Objective To develop an internet-based supportive intervention program for family caregivers of older patients with lung cancer and to evaluate its clinical feasibility.Methods Using the Communal Coping Model as theoretical framework,an internet-based supportive intervention program was developed by literature review and expert consultation.Then,a feasibility study was conducted.Results The intervention program included 5 first-level indexes(disease-related information support,caregiving skills support,social and work support,psychological and emotional support,and communication support),20 second-level indexes and 57 third-level indexes.Among 21 couples who met the inclusion criteria,only 15 of the couples participated in the study,with the recruitment rate of 71.4％.Twelve couples completed the study,with the retention rate of 80.0％.The overall adherence rate was(90.4±10.6)％,and the scoring rate of acceptance of the intervention was 96.1％.After 42 days of intervention,the score of sup-portive care needs of patients and the score of comprehensive needs of caregivers were significantly decreased(both P＜0.05).The scores of dyadic coping of patients and caregivers were significantly improved after the intervention(both P＜0.05).Conclusion The internet-based supportive intervention program for family caregivers of older patients with lung cancer is feasible,but the ef-fectiveness needs to be verified by large sample size,randomized,controlled trials.
关键词
肺癌/照顾者/支持性照护/网络支持/二元应对/信息支持/照顾技能/未满足需求Key words
lung cancer/caregivers/supportive care/internet-based support/dyadic coping/information support/care-giving skill/unmet needs引用本文复制引用
基金项目
苏州市医学重点扶持学科建设项目(SZFCXK202106)
苏州市医院协会感染管理专项研究课题(SZSYYXH-2023-YB4)
出版年
2024
NETL
NSTL
万方数据