Experience of Patients with Chronic Kidney Disease:A Qualitative Study
Objective To understand the experience of patients with chronic kidney disease(CKD)and pro-vide basis for developing personalized intervention.Methods A phenomenological study was conducted and a purposive combined with the snowball sampling method used to select 18 patients with CKD in the De-partment of Nephrology of a tertiary A hospital in Henan Province from October 2021 to July 2022 for semi-structured in-depth interviews.Data were analyzed by the framework analysis method and ATLAS.TI software.Results 5 themes were extracted:experience of disease diagnosis,symptom distress and changes in daily life,heavy financial burden,social behavioral withdrawal and social isolation,and needs for diverse support.Conclusions Patients with CKD have multidimensional problems and needs in the disease process.Healthcare professionals should focus on improving primary prevention and treatment,promoting health education,exploring appropriate psychological intervention strategies,and using telemedicine for continued care on CKD patients,so as to improve their quality of life.
chronic kidney diseasereal-life experienceneed on caregivingqualitative study
申红霞、黎敏仪、赖美琦、严斯静、Rianne van der Kleij、Niels Chavannes