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儿童过敏性疾病专病数据库的建设与展望

Construction and prospects of a special disease database for allergic diseases of children

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目的:以儿童过敏性疾病临床诊疗数据为基础建立专病数据库,为开展多学科诊疗提供数据支撑,更大程度地发挥信息技术在推动临床诊疗水平提升、医学科研进步等方面的作用.方法:基于 2013 年 1 月—2018 年 7 月在上海市儿童医院就诊的过敏性疾病患儿临床诊疗数据,通过提取—转化—加载技术,统一清洗后存储为临床业务数据.将原业务系统中的结构化指标进行映射和归一化处理,人工标注非结构化内容,并利用自然语言处理技术进行后续结构化数据处理,最终建立数据模型,构建儿童过敏性疾病专病数据库.结果与结论:该专病数据库包含 16 个条目、60 个字段共 6 个主题数据模块,完成了对 333 029 例过敏性疾病患儿临床诊疗数据的采集和标准化,可为后续以数据库为基础的专科管理和辅助决策提供支撑,实现海量临床数据的存储、挖掘和分析.
Objective:To establish a special disease database based on clinical diagnosis and treatment data of pediatric allergic diseases so as to provide data support for multidisciplinary diagnosis and treatment and maximize the role of information technology in promoting the improvement of clinical diagnosis and treatment level and medical research progress.Methods:Based on the clinical diagnosis and treatment data of children with allergic diseases in Shanghai Children's Hospital from January 2013 to July 2018,the clinical data was uniformly cleaned and stored using the extract-transform-load technology.The structured indicators in the original business system were mapped and standardized,while the unstructured content was manually labelled.Natural language processing technology was then applied for post-structured governance to create a specialized disease data model,which was used to build a dedicated pediatric allergic disease database.Results&Conclusion:The special disease database consists of 6 thematic data modules,including 16 items and 60 fields.We have achieved the collection and standardization of clinical diagnosis and treatment data for 333 029 children with allergic diseases,and further explored the distribution of diseases.The establishment of a special database for pediatric allergic diseases has enabled the storage,mining,and analysis of massive clinical data in the real world,providing support for the subsequent expansion of database based specialized management and decision-making assistance.

childrenallergic diseasesspecial disease databasebig datainformatization

纪和雨、于广军

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上海交通大学医学院附属瑞金医院 上海 200025

香港中文大学(深圳)附属第二医院 深圳 518172

儿童 过敏性疾病 专病数据库 大数据 信息化

2024

上海医药
上海医药行业协会

上海医药

影响因子:0.781
ISSN:1006-1533
年,卷(期):2024.45(9)