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小耳畸形照护者住院时护理需求的质性研究

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目的 探讨小耳畸形照护者住院时的护理需求,分析现存的问题及原因.方法 利用目的抽样和最大变异原则,选取2023年9-12月于中国医学科学院整形外科医院外耳整形再造科接受小耳畸形手术的照护者进行半结构化深度访谈.通过质性研究和Colaizzi现象学分析法,提炼主题概念,分析访谈数据以识别照护者主要护理需求.结果 共纳入12名照护者,其护理需求可归为4个相关主题:(1)加强照护者院前沟通.(2)照护者应激状态下的心理支持.(3)常规照护者的角色更换.(4)病耻感的不确定性.结论 强调医护工作者对小耳畸形照护者的关注和支持,提倡建立医护一体化管理模式,制定针对性护理需求对策,及早识别、干预照护者的病耻感.
A qualitative study of the care needs of caregivers of patients with microtia during hospitalization
Objective To investigate the inpatient care needs of caregivers of children with microtia,to identify existing problems and their causes.Methods Using purposive sampling and the principle of maximum variation,caregivers of children who underwent microtia surgery at the Department of External Ear Reconstruction,Plastic Surgery Hospital,Chinese Academy of Medical Sciences from September to December 2023 were selected for semi-structured in-depth interviews.Through qualitative research and Colaizzi's phe-nomenological analysis,thematic concepts were extracted and interview data were analyzed to identify the primary care needs of care-givers.Results A total of 12 caregivers were included in the study.Their care needs were categorized into four main themes:(l)im-proved pre-admission communication for caregivers;(2)psychological support for caregivers under stress;(3)role transition for regular caregivers;(4)uncertainty related to the stigma of the disease.Conclusion The study highlights the importance of attention and support from health professionals for caregivers of children with microtia.It advocates the establishment of an integrated health care management model,the development of targeted care strategies,and the early identification and intervention of caregiver stigma.

Microtia caregiversNursing needsQualitative research

安燕、刘娜、孟庆芳、刘惠子、王英杰

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中国医学科学院北京协和医学院整形外科医院外耳整形再造科,北京 100144

中国医学科学院北京协和医学院整形外科医院护理部,北京 100144

中国医学科学院北京协和医学院整形外科医院研究型病房,北京 100144

小耳畸形照护者 护理需求 质性研究

2024

中国美容整形外科杂志
中国医师协会 辽宁省人民医院 沈阳军区总医院

中国美容整形外科杂志

CSTPCD
影响因子:0.605
ISSN:1673-7040
年,卷(期):2024.35(12)