The Power of Information in Disaster and Reconstruction:Study on the Obstacles of and Countermeasures for the Acquisition of Acute Lymphoblastic Leukemia Information
Families devastated by children's acute lymphoblastic leukemia(ALL)are often in lack of timely and adequate information support.Study on these families'information needs and information behaviors is expected to provide medical decision-making aids,save more juvenile lives,reduce the fear,anxiety and helplessness that ALL could bring to these families.Through two years of participatory observation on a relevant group,it is found out that these families have met various obstacles of information acquisition,such as preconceived misleading information,difficulties in justifying the information sources,diverse needs under single attribution,etc.To optimize the information acquisition environment for these families,it is necessary to provide open and authoritative medical information about ALL,innovate the channels and means of scientific popularization so as to improve the public's cognition of ALL,and construct convenient information platforms for the public to communicate with medical and healthcare institutions.Besides,libraries should play a more active role in providing more accurate information services for these families.
acute lymphoblastic leukemia(ALL)family information needsinformation acquisitionhealth information servicesparticipatory observation
NETL
NSTL
万方数据
