On the Practical Dilemma and Perfecting Improvement of Data Rights and Interests Protection in the Utilization of Health and Medical Data——Take the European Health Data Space as an Example
It is important to study the utilization of health and medical data from the perspective of multi-subject data rights protection to fully release the value of data and establish a stable order of harmonious coexistence of data utiliza-tion and data protection.At present,the utilization of health and medical data still faces problems such as lack of autonomous control,data leakage,poor interoperability,uncertain income rights,and weak overall supervision.The practice exploration of the EU health data space provides a new idea for reference for the realization of the rights and interests of all parties.Based on the stakeholder theory,this paper analyzes the stakeholders and their rights and interests in the utilization of health and medical data,and comb through the literature processing system the realistic dilemma of the original data providers,data controllers,data processors,data users and data regulators in the utilization of health and medical data.Then we will discuss and summarize the response plan of the EU health data space.Finally,the paper puts forward some suggestions for improving the system of health care data rights protection,protecting patients'priva-cy,strengthening the construction of technical standards,and clarifying the rules and supervision system of data benefits.
data spaceshealth medical datadata utilizationdata rights and interests
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