Objective:To investigate the influence of social support and self-efficacy on the burden of primary caregivers for patients with Wilson disease.Methods:General data questionnaire,Social Support Rating Scale(SSRS),General Self-Efficacy Scale(GSES)and Zarit Burden Interview(ZBI)were used to investigate the primary caregivers of 75 patients with Wilson disease from June to December 2022.Results:The total score of the primary caregivers of patients with Wilson disease was31.72±16.00,which was at medium level.There were significant differences in ZBI scores among caregivers of Wilson disease patients with different types,as well as among caregivers of different ages and employment statuses(P<0.05).Caregiver burden was negatively correlated with both social support and self-efficacy(P<0.05).Regression analysis showed that the main factors influencing caregiver burden were self-efficacy and social support(P<0.05).Conclusion:There are different levels of burden in caregivers of Wilson disease patients,which can be alleviated by enhancing social support and self-efficacy.
关键词
Wilson病/照顾者负担/社会支持/自我效能
Key words
Wilson disease/caregiver burden/social support/self-efficacy
维普
万方数据