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社会支持和自我效能对Wilson病照顾者负担的影响

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目的:研究社会支持和自我效能对Wilson病照顾者负担的影响.方法:采用一般资料调查表、社会支持评定量表(SSRS)、一般自我效能感量表(GSES)、照顾者负担量表(ZBI)对2022 年6~12 月于安徽中医药大学神经病学研究所附属医院住院治疗的75 例Wilson病患者的主要照顾者进行调查研究.结果:Wilson病照顾者负担总分(31.72±16.00)分,处于中等水平.不同疾病分型患者的照顾者及不同年龄、就业情况的照顾者负担评分差异有统计学意义(P<0.05);照顾者负担与社会支持及自我效能均呈负相关(P<0.05).回归分析显示影响照顾者负担的主要因素为自我效能和社会支持(P<0.05).结论:Wilson病照顾者存在不同水平的照顾负担,可通过提高社会支持和自我效能减轻照顾者负担.
Influence of social support and self-efficacy on caregiver burden in patients with Wilson disease
Objective:To investigate the influence of social support and self-efficacy on the burden of primary caregivers for patients with Wilson disease.Methods:General data questionnaire,Social Support Rating Scale(SSRS),General Self-Efficacy Scale(GSES)and Zarit Burden Interview(ZBI)were used to investigate the primary caregivers of 75 patients with Wilson disease from June to December 2022.Results:The total score of the primary caregivers of patients with Wilson disease was31.72±16.00,which was at medium level.There were significant differences in ZBI scores among caregivers of Wilson disease patients with different types,as well as among caregivers of different ages and employment statuses(P<0.05).Caregiver burden was negatively correlated with both social support and self-efficacy(P<0.05).Regression analysis showed that the main factors influencing caregiver burden were self-efficacy and social support(P<0.05).Conclusion:There are different levels of burden in caregivers of Wilson disease patients,which can be alleviated by enhancing social support and self-efficacy.

Wilson diseasecaregiver burdensocial supportself-efficacy

权范良、方明娟、许亚运、陈林、孙国、金艳、胡文彬

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安徽中医药大学神经病学研究所附属医院 神经内科,安徽 合肥 230061

Wilson病 照顾者负担 社会支持 自我效能

安徽省自然科学基金青年基金国家临床重点专科建设开放式基金一般项目

2308085QH2902020sjyb06

2024

皖南医学院学报
皖南医学院

皖南医学院学报

CSTPCD
影响因子:0.695
ISSN:1002-0217
年,卷(期):2024.43(3)