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难治性癫痫患儿主要照顾者希望水平的现状及影响因素

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目的:探讨难治性癫痫患儿主要照顾者希望水平的现状,分析其影响因素.方法:选取2020年6月~2022年6月南京医科大学附属儿童医院162例难治性癫痫患儿及主要照顾者为调查对象,采用多元线性回归分析主要照顾者希望水平现状的影响因素.结果:难治性癫痫患儿主要照顾者希望水平(33.36±5.97)分、生活质量(71.46±8.69)分、心理韧性总分(75.79±5.45)分,均处于中等水平,且希望水平总分和各维度评分与生活质量评分及心理韧性评分均呈正相关性(P<0.05).单因素分析显示,近6个月癫痫发作频率、主要照顾者文化程度、家庭月收入、医疗方式与主要照顾者希望水平相关,差异有统计学意义(P<0.05).多元线性回归分析显示,生活质量越高、心理韧性越高、主要照顾者文化程度大专及以上、家庭月收入高、近6个月频率偶有发作、医疗支付方式商业保险,难治性癫痫患儿主要照顾者希望水平越高(P<0.05).结论:难治性癫痫患儿主要照顾者的希望水平处于中等水平,生活质量、心理韧性、主要照顾者文化程度、家庭月收入、患儿近6个月发作频率、医疗支付方式均是难治性癫痫患儿主要照顾者希望水平的影响因素,临床应予重视,进行针对性护理干预.
Status of hope level and its influencing factors in primary caregivers of children with refractory epilepsy
Objective:To investigate the status quo and influencing factors of level of hope among primary caregivers of children with refractory epilepsy.Methods:The primary caregivers of 162 children with refractory epilepsy were included in our hospital from June 2020 to June 2022.Multiple linear regression analysis was conducted to screen the influencing factors of level of hope among primary caregivers.Results:The scoring of primary caregivers of children with refractory epilepsy was 33.36±5.97 for level of hope,71.46±8.69 for quality of life,and 75.79±5.45 for psychological resilience.The level of hope was in moderate,and positively correlated with the scoring at each component,quality of life and psychological resilience(P<0.05).Univariate analysis indicated that frequency of seizures in the last six months,primary caregiver's literacy,monthly household income,and medical treatment were statistically associated with primary caregiver's level of hope(P<0.05).Multiple linear regression analysis revealed that higher level of hope was associated with higher quality of life,psychological resilience,education level of the main caregivers and monthly income of the family as well as the frequency of occasional seizures in the past six months,the medical payment method of commercial insurance,and the main caregivers for children with refractory epilepsy(P<0.05).Conclusion:The level of hope of primary caregivers of children with refractory epilepsy is moderate.Quality of life,psychological resilience,primary caregiver literacy,monthly household income,and frequency of seizures in the last six months are all factors affecting the level of hope of primary caregivers of children with refractory epilepsy,thus targeted nursing interventions are of vital importance.

refractory epilepsychildrenprimary caregiverlevel of hopeinfluencing factor

裴茜茜、李成承

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南京医科大学附属儿童医院 儿童重症监护室,江苏 南京 210000

难治性癫痫 患儿 主要照顾者 希望水平 影响因素

南京市卫生科技发展专项基金项目

YKK22160

2024

皖南医学院学报
皖南医学院

皖南医学院学报

CSTPCD
影响因子:0.695
ISSN:1002-0217
年,卷(期):2024.43(5)
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