Qualitative research on the self-management dilemma in young and middle-aged patients with recurrent acute pancreatitis
张雪梅 1郭燕杰 1党雪 1刘聪慧 1张梦桐 1任晓青 1董雪 1刘英
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作者信息
1. 长春中医药大学护理学院，长春 130117
折叠
摘要
目的 从护士、患者及患者照顾者视角深入挖掘中青年复发性急性胰腺炎患者自我管理困境的原因，为制订符合患者需求的自我管理干预方案提供参考。 方法 采用质性研究中的描述性现象学研究方法，选取2021年11月—2022年12月在吉林大学第二医院肝胆胰外科病房的15例复发性急性胰腺炎患者、6名护士、9名照顾者进行半结构式深入访谈。采用Colaizzi 7步法进行分析并提炼主题。 结果 对中青年复发性急性胰腺炎患者在自我管理过程中产生困境的原因提炼出2个主题，其中自我管理困境的内部原因包括自我管理重要性的认知偏差、获取自我管理知识的途径局限、自我行为管理态度消极；自我管理困境的外部原因包括外部环境对疾病的包容性不足、疾病进展的恐惧、疾病带来的多重负担、工作繁忙。 结论 中青年复发性急性胰腺炎患者在自我管理过程中存在多重困境，临床医护人员应探索具有时代特色的患者自我管理模式，提升患者自我管理能力和生活质量，降低疾病复发率。 Objective To explore the causes of self-management dilemma in young and middle-aged patients with recurrent acute pancreatitis from the perspectives of nurses, patients and patient caregivers, in order to provide reference for developing self-management intervention plans that meet the needs of patients. Methods Using the descriptive phenomenological methods from qualitative research, 15 patients with recurrent acute pancreatitis, six nurses and nine caregivers from the Hepatobiliary Pancreatic Surgery Ward of the Second Norman Bethune Hospital of Jilin University from November 2021 to December 2022 were selected for semi-structured in-depth interviews. The Colaizzi 7-step method was used to analyze and refine the theme. Results Two main themes were extracted to explain the difficulties in self-management of young and middle-aged patients with recurrent acute pancreatitis. The internal reasons for the self-management dilemma included cognitive biases in the importance of self-management, limited access to self-management knowledge and negative attitudes towards self-behavior management, and the external reasons for self-management dilemma included insufficient inclusiveness of the external environment towards diseases, fear of disease progression, multiple burdens caused by diseases and busy work. Conclusions Young and middle-aged patients with recurrent acute pancreatitis experience multiple difficulties in the process of self-management. Clinical medical staff should explore self-management models with contemporary characteristics, enhance patient self-management ability and quality of life, reduce disease recurrence rate.
Abstract
Objective To explore the causes of self-management dilemma in young and middle-aged patients with recurrent acute pancreatitis from the perspectives of nurses, patients and patient caregivers, in order to provide reference for developing self-management intervention plans that meet the needs of patients. Methods Using the descriptive phenomenological methods from qualitative research, 15 patients with recurrent acute pancreatitis, six nurses and nine caregivers from the Hepatobiliary Pancreatic Surgery Ward of the Second Norman Bethune Hospital of Jilin University from November 2021 to December 2022 were selected for semi-structured in-depth interviews. The Colaizzi 7-step method was used to analyze and refine the theme. Results Two main themes were extracted to explain the difficulties in self-management of young and middle-aged patients with recurrent acute pancreatitis. The internal reasons for the self-management dilemma included cognitive biases in the importance of self-management, limited access to self-management knowledge and negative attitudes towards self-behavior management, and the external reasons for self-management dilemma included insufficient inclusiveness of the external environment towards diseases, fear of disease progression, multiple burdens caused by diseases and busy work. Conclusions Young and middle-aged patients with recurrent acute pancreatitis experience multiple difficulties in the process of self-management. Clinical medical staff should explore self-management models with contemporary characteristics, enhance patient self-management ability and quality of life, reduce disease recurrence rate.
关键词
急性胰腺炎/复发/中青年/自我管理/困境/质性研究
Key words
Acute pancreatitis/Recurrence/Young and middle-aged/Self-management/Dilemma/Qualitative research
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