Meta-synthesis of qualitative research on experience of spouse caregivers of dementia patients
杨嘉伟 1刘艳丽 1刘瑞 1高永娥 1沈玮 1何月
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作者信息
1. 山东中医药大学护理学院，济南 250355
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摘要
目的 整合痴呆患者配偶在照顾过程中的真实体验。 方法 计算机检索PubMed、Web of Science、Embase、Cochrane Library、澳大利亚乔安娜布里格斯研究所（JBI）循证卫生保健中心数据库、CINAHL、PsycINFO、中国知网、万方数据库、维普网、中国生物医学文献数据库中关于痴呆患者配偶照顾者照护体验、需求、经历、感受的质性研究。检索时限为建库至2023年5月。采用JBI循证卫生保健中心质性研究质量评价标准对文献进行评价，采用汇集整合方法对纳入文献的研究结果进行整合分析。 结果 共纳入17篇文献，提炼出62个主要研究结果，归纳为9个新类别，并综合成3个整合结果：照顾负担加重并伴随多种负性情绪，积极应对疾病、体验正性情绪与照顾益处，多种需求未得到满足、渴望获得支持。 结论 建议医护人员重视配偶照顾者生理、心理以及社会负担，使用"互联网+"服务以及多学科联合的心理支持疗法，帮助配偶及时纾解负性情绪，同时与社区加强联系，构建"医院-社区-家庭"三级联动护理平台，给予个性化、实质性帮助。 Objective To integrate the real experience of spouse caregivers in the process of caring for dementia patients. Methods Qualitative researches on the caregiving experience, needs, experience and feelings of spouse caregivers for dementia patients was conducted through computer searches of PubMed, Web of Science, Embase, Cochrane Library, Joanna Briggs Institute (JBI) Evidence Based Healthcare Center Database, CINAHL, PsycINFO, China National Knowledge Infrastructure, Wanfang Database, VIP and China Biology Medicine Disc. The search period was from establishment of the databases to May 2023. The literature was evaluated using JBI quality evaluation criteria for evidence-based health care center quality research, and the results of the included literature were integrated and analyzed by aggregative integration method. Results A total of 17 articles were included, 62 main research results were extracted and summarized into nine new categories, and three integrated results were synthesized, including increased caring burden accompanied by multiple negative emotions, positive coping with illness, experiencing positive emotions and benefits of caring, multiple unmet needs, and desire for support. Conclusions It is suggested that medical staff should pay attention to the physical, psychological and social burden of spouse caregivers, use the "Internet +"service and multidisciplinary psychological support therapy to help spouses relieve negative emotions in a timely manner, strengthen contact with the community, build a three-level linkage nursing platform of "hospital community family", and give personalized and substantive help.
Abstract
Objective To integrate the real experience of spouse caregivers in the process of caring for dementia patients. Methods Qualitative researches on the caregiving experience, needs, experience and feelings of spouse caregivers for dementia patients was conducted through computer searches of PubMed, Web of Science, Embase, Cochrane Library, Joanna Briggs Institute (JBI) Evidence Based Healthcare Center Database, CINAHL, PsycINFO, China National Knowledge Infrastructure, Wanfang Database, VIP and China Biology Medicine Disc. The search period was from establishment of the databases to May 2023. The literature was evaluated using JBI quality evaluation criteria for evidence-based health care center quality research, and the results of the included literature were integrated and analyzed by aggregative integration method. Results A total of 17 articles were included, 62 main research results were extracted and summarized into nine new categories, and three integrated results were synthesized, including increased caring burden accompanied by multiple negative emotions, positive coping with illness, experiencing positive emotions and benefits of caring, multiple unmet needs, and desire for support. Conclusions It is suggested that medical staff should pay attention to the physical, psychological and social burden of spouse caregivers, use the "Internet +"service and multidisciplinary psychological support therapy to help spouses relieve negative emotions in a timely manner, strengthen contact with the community, build a three-level linkage nursing platform of "hospital community family", and give personalized and substantive help.
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