摘要
目的 整合癌症患儿父母参与共同决策体验的质性研究,为医护人员在临床实践中更好地支持癌症患儿父母参与共同决策提供参考与借鉴.方法 检索中国知网、万方数据库、维普网、中国生物医学文献数据库、PubMed、Web of Science、Cochrane Library、Embase、CINAHL 中建库至 2023 年 2 月收录的关于癌症患儿父母参与共同决策体验和经历的质性研究.使用澳大利亚乔安娜布里格斯研究所循证卫生保健中心质性研究质量评价工具对文献进行评价,采用汇集性整合方法对结果进行整合.结果 共纳入14篇文献,提炼出56个主题,归纳为9个类别,形成癌症患儿父母参与共同决策的意愿强烈、癌症患儿父母在共同决策中的参与度存在差异、癌症患儿父母参与共同决策存在障碍、癌症患儿父母参与共同决策需要多方支持4个整合结果.结论 癌症患儿父母参与共同决策需要立足我国儿童癌症领域决策现状,构建本土化决策支持体系,医护人员要提高共同决策意识,解决癌症患儿父母参与共同决策的现实困境,满足其多元化的信息、情感和社会需求,提供支持性护理.
Abstract
Objective To integrate qualitative research on the experience of parents of children with cancer participating in shared decision-making,so as to provide reference for medical and nursing staff to support the participation of parents of children with cancer in shared decision-making.Methods The qualitative research on the experience of parents of children with cancer participating in shared decision-making was searched on China National Knowledge Infrastructure,WanFang Data,VIP,China Biology Medicine disc,PubMed,Web of Science,Cochrane Library,Embase,and CINAHL from the establishment of database to February 2023.The literature was evaluated using the quality evaluation criteria for qualitative research of the Australia Joanna Briggs Institute Evidence-Based Health Care Center.The aggregation integration method was used to integrate the results.Results A total of 14 articles were included,with 56 themes extracted and categorized into nine categories,forming four integrated results,including strong willingness of parents of children with cancer to participate in shared decision-making,differences in the participation of parents of children with cancer in shared decision-making,obstacles to parents'participation in shared decision-making,and the need for multiple parties to support the participation of parents of children with cancer in shared decision-making.Conclusions The participation of parents of children with cancer in shared decision-making needs to be based on the current situation of decision-making in the field of pediatric cancer in China,and a localized decision support system should be constructed.Medical and nursing staff should enhance their awareness of shared decision-making,solve the practical dilemma of parents of children with cancer participating in shared decision-making,meet their diverse information,emotional,and social needs,and provide supportive care.
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