中华现代护理杂志2024,Vol.30Issue(23) :3094-3098.DOI:10.3760/cma.j.cn115682-20230924-01228

慢性病患儿父母感知脆弱的负性影响及干预研究进展

Research progress on negative impact and intervention of parental perceptions of child vulnerability of children with chronic diseases

文谦 鲜于云艳 李娜 刘慧妮
中华现代护理杂志2024,Vol.30Issue(23) :3094-3098.DOI:10.3760/cma.j.cn115682-20230924-01228

慢性病患儿父母感知脆弱的负性影响及干预研究进展

Research progress on negative impact and intervention of parental perceptions of child vulnerability of children with chronic diseases

文谦 1鲜于云艳 2李娜 3刘慧妮4
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作者信息

  • 1. 武汉大学人民医院儿科,武汉 430060
  • 2. 武汉大学人民医院护理部,武汉 430060
  • 3. 山西晋城妇幼保健院护理部,晋城 048026
  • 4. 中南大学湘雅二院护理部,长沙 410007
  • 折叠

摘要

慢性病对患儿及其父母都带来了重大改变,相对于患儿,患儿父母更易感知到患儿的脆弱.即使医学上有依据表明慢性病患儿病情已处于稳定状态,但父母仍认为他们的孩子面对疾病、伤害或死亡十分脆弱,即慢性病患儿父母感知脆弱(PPCV).PPCV普遍存在于慢性病患儿中,会对患儿及其父母产生较大负性影响.本文回顾了慢性病患儿PPCV的概念、评估工具,并重点围绕慢性病患儿PPCV对患儿及其父母的负性影响和干预策略进行综述,以期为今后慢性病患儿PPCV的评估、预防与干预提供参考.

Abstract

Chronic diseases bring significant changes to both the child and their parents.Compared to the child,the child's parents are more likely to perceive the child's vulnerability.Even though there is medical evidence to suggest that children with chronic diseases are in a stable state,parents still believe that their children are very vulnerable to disease,injury,or death,that is,parental perceptions of child vulnerability(PPCV).PPCV is commonly present in children with chronic diseases and can have a significant negative impact on both the child and their parents.This paper reviews the concept and evaluation tools of PPCV in children with chronic diseases,and focuses on the negative impact and intervention strategies of PPCV on children and their parents,so as to provide reference for the evaluation,prevention,and intervention of PPCV in children with chronic diseases.

关键词

综述/慢性病/儿科/父母/感知脆弱/负性影响

Key words

Review/Chronic disease/Pediatrics/Parents/Perceived vulnerability/Negative impact

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基金项目

中华医学会杂志社护理学科研究课题(2021-2022)(CMAPH-NRD2021062)

湖北省卫生健康委湖北省重点实验室开放基金(2022)(2022KFH002)

武汉市护理学会立项科研课题(2022)(WHHL202208)

出版年

2024
中华现代护理杂志
中华医学会

中华现代护理杂志

CSTPCD
影响因子:1.14
ISSN:1674-2907
参考文献量9
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