目的 对脊髓损伤患者居家管理需求的质性研究进行系统评价和Meta整合,了解脊髓损伤患者自我管理的实际需求,提高我国脊髓损伤患者居家管理质量.方法 计算机检索中国知网、万方数据库、中国生物医学文献数据库、PubMed、Embase、Web of Science、CINAHL、Cochrane Library等数据库中关于脊髓损伤患者居家管理需求的质性研究文献.检索时限均为建库至2023年11月30日.采用澳大利亚乔安娜布里格斯研究所(JBI)循证卫生保健中心质性研究质量评价标准(2016)对纳入文献进行质量评价,并运用Meta整合方法对结果进行整合与分析.结果 共纳入15篇文献,提炼出58个明确的研究结果,归纳形成10个新类别,整合出正向情绪支持的需求、日常生活相关需求、卫生保健服务的需求、社会支持的需求4个整合结果.结论 医务人员应深入了解脊髓损伤患者居家管理需求,可基于人工智能技术建构医院-家庭-社会一体化的综合支持模式,建立完善脊髓损伤居家康复平台,关注患者心理问题,提高社会支持水平,以进一步改善患者生活质量.
Abstract
Objective To systematically evaluate and Meta-synthesize qualitative studies on the home management needs of patients with spinal cord injury(SCI)to understand their actual self-management needs and improve the quality of home management for patients with SCI in China.Methods A comprehensive search was conducted in databases including CNKI,Wanfang,CBM,PubMed,Embase,Web of Science,CINAHL,and Cochrane Library for qualitative research on the home management needs of patients with SCI,with a search timeframe up to November 30,2023.The methodological quality of the included studies was evaluated using the Joanna Briggs Institute(JBI)Qualitative Assessment and Review Instrument(2016).Results were integrated and analyzed using Meta-synthesize methods.Results A total of 15 studies were included,from which 58 distinct research findings were extracted.These were categorized into 10 new categories,which were further integrated into four main results:the need for positive emotional support,daily living-related needs,healthcare service needs,and social support needs.Conclusions Healthcare providers should deeply understand the home management needs of patients with SCI.Utilizing artificial intelligence technology,an integrated support model encompassing hospital,home,and society can be constructed.Establishing a comprehensive home rehabilitation platform for patients with SCI can focus on psychological issues and enhance social support levels,thereby improving patients'quality of life.
关键词
脊髓损伤/居家管理/居家康复/需求/生活质量/质性研究/Meta整合
Key words
Spinal cord injury/Home management/Home rehabilitation/Need/Quality of life/Qualitative study/Meta-synthesis