首页|Autism及相关术语的概念更迭和感知研究综述

Autism及相关术语的概念更迭和感知研究综述

扫码查看
文章综述了孤独症概念在西方与中文语境中的演变及感知,强调语言在构建孤独症认知的重要性,并提供了相关语言的翻译、解释和使用指南。西方关于"以人为先语言"和"身份优先语言"的讨论,反映了孤独症社群对身份认同的不同观点。中文语境中,孤独症话语由医学专业人士主导,公众的认知往往基于医学和慈善视角。不同中文使用者对于孤独症术语的建构和感知不同。"孤独症"和"自闭症"两个医学名词翻译隐含污名,尤其是"自闭症"因"自我封闭"的负面联想,常与"危险""负担"等负面标签相连。如"星星的孩子""闭娃"等行话尽管流行,但因其浪漫化、贬低性含义,以及对成人的忽视受到孤独症谱系障碍社群反感。"孤独症谱系障碍"因其贬义较少而更受欢迎。孤独症人士偏好中性和非病理化的表述。文章呼吁中文语境下的孤独症讨论应关注个体经历,尊重其主体性,反思潜在的健全者中心主义倾向,推广神经多样性理念,以促进社会对孤独症的全面理解和接纳。
A review of conceptual changes and perception studies of autism and related terminologies
This review provides an overview of the evolution and perceptions of the concept of autism within Western and Chinese contexts,as well as the perceptions of various groups toward official and related terminology.It emphasize the importance of language in constructing social cognition and values of autism,offering a guide to the translation,interpretation and usage of autism-related languages in Chinese.The discourse in the West surrounding"person-first language"and"identity-first language"reflects divergent perspectives on identity within the autistic community.In the Chinese context,the discourse on autism is largely led by professionals,with societal understanding of autism often shaped by medical and charity perspectives.Different Chinese users construct and perceive autism-related terms in diverse ways.The medical terms"孤独症"(gūdú zhèng)and"自闭症"(zìbì zhèng)carry stigmatizing connotations,especially"zìbì zhèng,"which,due to its negative association with self-imposed isolation,is often linked with negative labels such as"dangers"or"burdens."Terms like"星星的孩子"(xīngxīng de háizi)and"闭娃"(bì wá),despite their popularity,are criticized by the autistic community for their romanticized and demeaning connotations,and for overlooking adult autistic individuals.The term"孤独症谱系障碍"(gūdú zhèng pǔxì zhàng'ài)is preferred for its lesser stigmatizing implications.Autistic individuals prefer neutral and non-pathologizing expressions.This review calls for discussions of autism in the Chinese context to focus on individual experiences,respect their subjectivity,reflect on potential ableist tendencies,and promote the concept of neurodiversity,to foster a more comprehensive and inclusive societal understanding and acceptance of autistic people.

AutismLanguage use suggestionSocial constructionAbleismNeurodiversityTerm perceptionChinese context

刘宇翀、朱绘霖

展开 >

中山大学附属第三医院儿童发育行为中心,广东 广州 510630

孤独症 语言使用建议 社会建构 健全者中心主义 神经多样性 术语感知 中文语境

2024

新医学
中山大学

新医学

CSTPCD
影响因子:0.8
ISSN:0253-9802
年,卷(期):2024.55(12)