摘要
目的 了解HIV/AIDS合并肿瘤患者的生命质量状况及影响因素,为开展心理干预及制定相关健康管理制度提供参考.方法 采用便利抽样法,选择2022年1月至2023年6月在云南省传染病医院治疗的HIV/AIDS合并肿瘤患者为研究对象,采用《癌症患者生命质量测定量表》进行调查.结果 193名患者角色功能(69.90±30.88)分、躯体功能(69.26±25.33)分、认知功能(65.21±27.72)分、情绪功能(62.78±30.22)分、总体健康(51.38±27.34)分、社会功能(48.71±12.81)分;角色功能得分在居住地、受教育程度、月收入、有无照料者上差异有统计学意义(P<0.05),躯体功能得分在居住地、受教育程度、月收入、CD4细胞、VL上差异有统计学意义(P<0.05),认知功能得分在居住地、职业、受教育程度、月收入上差异有统计学意义(P<0.05),情绪功能得分在性别、居住地、受教育程度上差异有统计学意义(P<0.05),总体健康状况得分在年龄、居住地、受教育程度、VL上差异有统计学意义(P<0.05),社会功能得分在居住地、职业、受教育程度、月收入、有无照料者上差异有统计学意义(P<0.05);多元线性回归分析显示,有照料者的患者生命质量总得分高于无照料者(t=-2.642,P<0.05),高中及以上受教育程度的患者生命质量总得分高于小学受教育程度者(t=2.177,P<0.05).结论 HIV/AIDS合并肿瘤患者生命质量不容乐观,在总体健康和社会功能方面尤为突出;生命质量与患者是否被照料及受教育程度相关.建议医院采取个案管理、心理关怀等工作模式,主动对患者及照料者实施心理辅导.
Abstract
Objective This study aimed to understand the quality of life and influence factors in patients with HIV/AIDS and tumors,to provide a reference for the development of psychological interventions and relevant health management systems.Methods Convenient sampling was used to select study participants from a pool of patients with HIV/AIDS and tumors,treated in Yunnan Provincial Infectious Disease Hospital,from January 2022 to June 2023.The European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-C30 was used in this study.Results The scores of role function,physical function,cognitive function,emotional function,general health,and social function were 69.90±30.88,69.26±25.33,65.21±27.72,62.78±30.22,51.38±27.34,and 48.71±12.81,respectively.Role function varied significantly depending on the patient's place of residence,educational level,and monthly income,and the presence of a caregiver(P<0.05).Physical function varied significantly depending on the patient's place of residence,educational level,monthly income,CD4 cell count,and HIV viral load(P<0.05).Cognitive function varied significantly depending on the patient's place of residence,occupation,educational level,and monthly income(P<0.05).Emotional function varied significantly depending on the patient's gender,place of residence,and educational level(P<0.05).General health varied significantly depending on the patient's age,place of residence,educational level,and HIV viral load(P<0.05).Social function varied significantly depending on the patient's place of residence,occupation,educational level,and monthly income,and the presence of a caregiver(P<0.05).Multiple linear regression analysis revealed that patients with caregivers had a better quality of life than those without(t=-2.642,P<0.05).Moreover,patients who graduated from high school had a better quality of life than those who graduated from primary school only(t=2.177,P<0.05).Conclusions The quality of life of patients with HIV/AIDS and tumors is severely reduced,particularly in terms of their general health and social function.Their quality of life is related to the presence of a caregiver and the patient's educational level.It is recommended that hospitals adopt work models,such as case management and psychological care,and actively provide psychological counseling to the patients and their caregivers.
基金项目
云南省科技厅重大科技专项计划项目(202102AA310005-029)