首页|与死亡打太极——临终患者及家属死亡应对策略的质性研究

与死亡打太极——临终患者及家属死亡应对策略的质性研究

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目的:探究临终患者及家属的死亡应对策略,为构建本土化安宁疗护服务模式提供现实依据.方法:采用目的抽样法及滚雪球法,对 20 名临终患者及 21名家属进行半结构式访谈,运用解释现象学分析法和隐喻法进行资料分析和主题归纳.结果:包括五大主题:逃避、转折与迂回——掤手回掌;隐藏、忍耐与艰难决策——藏锋敛锐;平衡、摇摆与稳定——攻守衡之;柔和行为、转化表达——柔化而出;寄托、仪式与传承——顺势而为.结论:五大主题整合出临终患者及家属的死亡应对策略为"与死亡打太极",研究结果为临终患者及家属的死亡应对提供了更多文化视角下的理解,建议未来在顺应优秀中华文化基础上构建中国特色安宁疗护实践模式.
Playing Tai Chi with death:a qualitative study of death coping strategies of terminally ill patients and families
Objective:To explore the death coping strategies of terminally ill patients and families,and to provide a realistic basis for the construction of localised hospice service model.Methods:Semi-structured interviews with 20 terminally ill patients and 21 family members were conducted using purposive sampling and snowballing methods,and data were analysed and themes were summarised using interpretative phenomenological analysis and metaphorical methods.Results:Five major themes were included:①Escapes,Turns and Detours—Pushing the hand out and come back in;②Hiding,Endurance and Tough Decisions—Conceal spear and restrain sharpness;③Balance,sway and stability—Balance between offense and defense;④ Soft Behaviour,transformative Expression—Softening out;⑤Sustenance,Ritual and Heritage—A vehicle for better remembrance.Conclusion:The five themes integrated death coping strategies of terminally ill patients and families as"Playing Tai Chi with Death".The results of the study provide a culturally-inspired understanding of coping with death for terminally ill patients and families.The results also suggest that a hospice practice model with Chinese characteristics should be constructed on the basis of conforming to the excellent Chinese culture in the future.

terminally ill patientsfamilies memberdeath coping strategiesculturehospice care

阚吟诗、张晓天、徐天梦、宋静雨、龚霓、岳鹏

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首都医科大学护理学院,100069北京市

北京大学第三医院护理部

温州医科大学护理学院

晋城市人民医院护理部

暨南大学护理学院

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临终患者 家属 死亡应对策略 文化 安宁疗护

2022年度国家社会科学基金项目

22BSH150

2024

中国护理管理
卫生部医院管理研究所

中国护理管理

CSTPCD北大核心
影响因子:2.545
ISSN:1672-1756
年,卷(期):2024.24(7)