首页|炎症性肠病患者疾病认知与生命质量的关联性研究

炎症性肠病患者疾病认知与生命质量的关联性研究

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目的 分析我国炎症性肠病(Inflammatory Bowel Disease,IBD)患者疾病认知与生命质量的现状,研究疾病认知与生命质量之间的关系.方法 本研究为横断面研究,采用滚雪球的方便抽样方法选取IBD患者为研究对象.采用自制的相关资料调查表、修订版疾病感知问卷(Revised Illness Perception Questionnaire,IPQ-R)、IBD患者生存质量量表(Inflammatory Bowel Disease Questionnaire,IBDQ)进行问卷调查.利用多元线性回归分析疾病认知与生命质量的关联.结果 共调查224例IBD患者,疾病认知各维度得分为3.12~3.64分,IBDQ总分为(168.83±36.72)分.正性认知(个人控制、治疗控制和疾病一致感维度)得分与生命质量得分呈正相关(P<0.05),而负性认知(病程、周期性、后果、情感陈述维度)得分与生命质量得分呈负相关(P<0.05).多元线性回归结果显示,调整了疾病活动度等协变量后,疾病认知中的治疗控制(β=10.467,95%CI:1.956~18.979,P<0.05)和情感陈述(β=-16.301,95%CI:-22.388~-10.215,P<0.001)维度仍然对 IBDQ 有影响.结论 疾病认知与生命质量存在广泛关联,对患者进行健康教育和管理时,根据其认知特点采取针对性的措施,增强其治疗信念感,重视其心理健康,改善患者生命质量.
Study on the correlation between illness perception and quality of life in patients with inflammatory bowel dis-ease
Objective To describe the current situation of illness perception and quality of life in patients with in-flammatory bowel disease(IBD),and to explore the correlation between illness perception and quality of life.Methods The current study was a cross-sectional study.A total of 224 patients with inflammatory bowel disease in China were selected as the study subjects by convenience sampling method.A self-designed questionnaire,Revised Illness Perception Question-naire(IPQ-R)and Inflammatory Bowel Disease Questionnaire(IBDQ)were used to investigate.Finally,multiple linear regression model was used to analyze the correlation between illness perception and quality of life.Results The scores of seven subscales of IPQ-R ranged from 3.12 to 3.64.The total score of IBDQ was(168.83±36.72).The scores of positive perception(personal control,treatment control and coherence)were positively correlated with the score of IBDQ(P<0.05),while negative perception(duration of IBD,cyclical symptoms,consequences,emotional representations)scores were negatively correlated with the score of IBDQ(P<0.05).Multiple linear regression results showed that after adjusting for covariates,dimensions of treatment control(β=10.467,95%CI:1.956-18.979,P<0.05)and emotional repre-sentations(β=-16.301,95%CI:-22.388--10.215,P<0.001)still had influence on IBDQ.Conclusion Given the significant association between illness perception and quality of life,understanding and tailoring the patient's perspective and perception of the disease may be helpful in targeting treatment and management strategies and psychological support.

Inflammatory bowel diseaseIllness perceptionQuality of life

贾菡蕊、白月、黄依璐、吕霖、路新源、陈思锟、张雅宣、陈登、余金明

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复旦大学公共卫生学院,上海 200032

炎症性肠病 疾病认知 生命质量

2024

中国健康教育
中国健康教育中心 中国健康促进与教育协会

中国健康教育

CSTPCD北大核心
影响因子:1.261
ISSN:1002-9982
年,卷(期):2024.40(1)
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