Sinicization of the Gothenburg Young Persons Empowerment Scale-Congenital Heart Disease and the test of its reliability and validity
Background Adolescents with congenital heart disease(CHD)face physical and psychological challenges during their growth.Self-empowerment is an important indicator of their self-management ability and quality of life.Currently,there is a lack of relevant assessment tools in China.Objective To translate the Gothenburg Young Persons Empowerment Scale-Congenital Heart Disease(GYPES-CHD)into Chinese and test its reliability and validity.Design Reliability and validity analysis.Methods The Brislin translation model was used to translate the scale through forward translation,back translation,and back-translation comparison.Seven experts in the relevant fields were invited for evaluation,and a purposive sampling method was used to select 15 CHD adolescents of different ages and educational levels for cognitive interviews.Adolescents with congenital heart disease(CHD)aged between 10 to 18 years,who were diagnosed at our hospital,had long-term follow-up,possessed certain reading and writing abilities,and were able to understand the questionnaire,were included.Adolescents with comorbidities affecting intellectual development,other systemic diseases requiring multiple surgeries,or conditions leading to mental disorders were excluded.Participants completed a general information survey,the Chinese version of the GYPES-CHD,and the General Self-Efficacy Scale(GSES).Main outcome measures Reliability and validity of the Chinese version of GYPES-CHD.Results A total of 166 questionnaires were distributed,and 153 were returned(response rate of 92.16%)to be included in the analysis.The Chinese version of GYPES-CHD consists of 5 dimensions and 15 items.Item analysis showed that the Pearson correlation coefficients between the scores of each item,dimension and the total score of the Chinese version of GYPES-CHD ranged from 0.210 to 0.538(P<0.001).The critical ratio(CR)for the 15 items was between 4.218 and 12.358(P<0.001).The Cronbach's α coefficient of the Chinese version of GYPES-CHD was 0.905,and the Cronbach's α coefficients for the five dimensions ranged from 0.740 to 0.851.The test-retest reliability was 0.869,and the Cronbach's α coefficients for the five dimensions were between 0.783 and 0.837,with a correlation coefficient of 0.841 between the total scores of the two administrations.The content validity index at the scale level and item level were 0.906 and 0.947,respectively.The correlation coefficient between the total GSES score and the total score of the Chinese version of GYPES-CHD was 0.52(P<0.01),and the criterion-related validity with the five dimensions ranged from 0.375 to 0.495(P<0.01).Conclusion The Chinese version of GYPES-CHD has good reliability and validity and can be used to assess the empowerment level of CHD adolescents in the context of Chinese culture.