重型地中海贫血患儿父母创伤后成长的研究进展
Research progress on post-traumatic growth of parents of children with thalassemia major
余云飞 1农婵媛 1赵凯丽 2农明 3陶嘉怡 1韦桂源1
作者信息
- 1. 右江民族医学院,广西百色 533000
- 2. 右江民族医学院附属医院泌尿外科一病区,广西百色 533000
- 3. 右江民族医学院附属医院重症医学科,广西百色 533000
- 折叠
摘要
重型地中海贫血是一种常见的遗传性血红蛋白病,伴有严重的贫血,在治疗过程中需长期输血和去铁治疗.重型地中海贫血不但会对患儿造成巨大的身体及心理创伤,影响患儿的生活质量,同时也加重整个家庭的经济负担,而且在长期的治疗及护理中,其父母在精神上受到极大的打击,易产生负面情绪,出现不健康的心理状况.因此,本文从创伤后成长的角度出发,对创伤后成长相关概念及研究进展、重型地中海贫血患儿父母的心理特点及其影响因素、干预措施进行综述,为更好地开展重型地中海贫血患儿及父母的心理干预提供依据.
Abstract
Thalassemia major is a common hereditary hemoglobin disease accompanied by severe anemia,which requires long-term blood transfusion and iron removal treatment during the treatment process.Thalassemia major not only causes significant physical and psychological trauma to children,affecting their quality of life,but also increases the economic burden on the entire family.In addition,during long-term treatment and care,parents are greatly affected mentally,resulting in negative emotions and unhealthy psychological conditions.Therefore,from the perspective of post-traumatic growth,this article reviews the concepts and research progress related to post-traumatic growth,the psychological characteristics and influencing factors of parents of children with thalassemia major,and intervention measures,in order to provide a basis for better psychological intervention for children with thalassemia major and their parents.
关键词
重型地中海贫血/父母/创伤后成长/心理干预Key words
Thalassemia major/Parents/Post-traumatic growth/Psychological intervention引用本文复制引用
基金项目
广西壮族自治区医疗卫生适宜技术开发与推广应用项目(S2020122)
出版年
2024
国家科技期刊平台
NSTL
万方数据