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溃疡性结肠炎患者自我管理现状的质性研究

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目的 探讨溃疡性结肠炎患者自我管理的现状及健康教育需求。方法 采用现象学研究方法,选取2022年1-12月在福建医科大学附属三明第一医院消化二区住院的13例溃疡性结肠炎患者,对他们进行半结构式访谈,并采用Colaizzi七步分析法进行分析、归纳主题。结果 溃疡性结肠炎患者的自我管理现状可归纳为疾病认知、疾病管理态度、疾病管理行为3大主题。疾病认知包括疾病基本知识的缺乏、持续性获取知识能力的缺乏、疾病知识接受度低;疾病管理态度包括积极型、轻视型、悲观型;疾病管理行为包括健康行为的意识不足、健康行为的实践存在困境、健康促进的自我探索。结论 溃疡性结肠炎患者在疾病认知、态度、自我管理行为等方面的表现不容乐观。患者确诊后难以接受到系统、规范的疾病知识教育及延续性护理,导致其应对疾病的方式存在一定不规范性及不科学性。医护人员应满足患者健康教育的个性化需求,增强延续性护理服务力度,以提升患者认知水平,改变患者行为态度,提升患者生活质量。
A qualitative study of self-management status in patients with ulcerative colitis
Objective To investigate the self-management status and health education needs of patients with ulcerative colitis.Methods A total of 13 patients with ulcerative colitis admitted to the Department of Gastroenterology Ⅱ of Sanming First Hospital Affiliated to Fujian Medical University from January to December 2022 were selected using the phenomenological research method.Semi-structured interviews were conducted with them,which were analyzed and summarized into themes using Colaizzi's seven-step analysis method.Results The self-management status in patients with ulcerative colitis can be summarized into 3 major themes:disease cognition,disease management attitudes,and disease management behaviors.Disease cognition includes lack of basic knowledge of the disease,lack of ability to acquire knowledge on an ongoing basis,and low acceptance of knowledge of the disease.Disease management attitudes include positive,belittling,and pessimistic types.Disease management behaviors include insufficient awareness of health behaviors,dilemmas in the practice of health behaviors,and self-exploration of health promotion.Conclusion The current situation of patients with ulcerative colitis in terms of disease cognition,attitudes and self-management behaviors is not optimistic.It is difficult for patients to receive systematic and standardized education on disease knowledge and continued nursing after diagnosis,leading to some non-standard and unscientific ways of coping with the disease.Healthcare professionals should meet the individual needs of patients for health education and enhance the continued nursing services to improve patients'cognitive level,change their behavioral attitudes and improve their quality of life.

Ulcerative colitisSelf-managementHealth educationQualitative study

纪秋露、魏文冰

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福建医科大学附属三明第一医院消化二区,福建三明 365000

溃疡性结肠炎 自我管理 健康教育 质性研究

2024

中国医药科学
海峡两岸医药卫生交流协会 二十一世纪联合创新(北京)医药科学研究院

中国医药科学

影响因子:1.083
ISSN:2095-0616
年,卷(期):2024.14(19)