摘要
目的 探讨银屑病患者配偶的生活质量现状,并对其影响因素进行分析.方法 采用便利抽样法,选取2022 年 7 月—2023 年 1 月在同济大学附属上海市皮肤病医院就诊的 245 对斑块状银屑病患者及其配偶为研究对象.采用一般资料调查表、家庭皮肤病生活质量指数(FDLQI)、皮肤病生活质量指数(DLQI)、医院焦虑和抑郁量表(HADS)进行调查.配偶的生活质量影响因素的分析采用Kruskal-Wallis检验、Mann-Whitney U检验、相关分析及多元线性回归分析.结果 银屑病患者配偶生活质量评分为(7.65±6.47)分,其中,89.6%的配偶报告生活质量有受损情况.单因素分析结果显示,患者的教育程度、是否累及指甲、既往是否接受传统治疗、体表受累面积(BSA)、躯干银屑病面积和严重程度指数(PASI)、上肢PASI、下肢PASI、临床医师整体评估(PGA)、DLQI、患者对病情的总体评估(PtGA)、焦虑和抑郁评分以及配偶自身焦虑和抑郁评分,均与配偶的FDLQI显著相关(P＜0.05).多元线性回归分析结果显示:患者的BSA、DLQI、PtGA和配偶自身的焦虑评分是影响配偶生活质量的因素.结论 临床实践中,银屑病患者配偶的生活质量受损现象较为普遍.因此,在为患者制定治疗计划、做出治疗决策、制定教育计划以及提供心理支持时,皮肤科医生和护士应该充分考虑患者的配偶.
Abstract
Objective In order to explore the quality of life of spouses of patients with psoriasis and analyze their influencing factors.Methods Convenient sampling method was utilized to select a total of 245 pairs of plaque-type psoriasis patients and their spouses who sought medical treatment at Shanghai Skin Disease Hospital from July 2022 to January 2023.The investigation involved the use of general information questionnaire,the family dermatology life quality index(FDLQI),the dermatology life questionnaire index(DLQI),and the hospital anxiety and depression scale(HADS).The analysis of factors influencing the quality of life of spouses was conducted using the Kruskal-Wallis test,the Mann-Whitney U test,correlation analysis,and multiple linear regression analysis.Results The quality of life score for spouses of patients with psoriasis was 7.65±6.47,and 89.6%of spouses reported animpaired quality of life.Results from univariate analysis showed that the patient's education level,nail involvement,previous traditional treatment,body surface area(BSA),psoriasis area and severity index(PASI),PASI in the upper limbs,PASI in the lower limbs,physician's global assessment(PGA),DLQI,the patient's global assessment(PtGA),anxiety and depression scores,as well as the spouse's own anxiety and depression scores,were all significantly correlated with the spouse's FDLQI(P＜0.05).The results of multiple linear regression analysis showed that the patient's BSA,DLQI,PtGA,and the spouse's own anxiety scores were the factors affecting the quality of life of spouses.Conclusion In clinical practice,it is quite common for the quality of life of spouses of patients with psoriasis to be impaired.Therefore,when developing treatment plans,making treatment decisions,formulating educational plans,and providing psychological support,dermatologists and nurses should give full consideration to the patient's spouse.
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