Post-discharge follow-up of patients with spine trauma in the National Spinal Cord Injury Registry of Iran during the COVID-19 pandemic:Challenges and lessons learned

Zahra Azadmanjir ¹Moein Khormali ²Mohsen Sadeghi-Naini ³Vali Baigi ⁴Habibollah Pirnejad ⁵Mohammad Dashtkoohi ⁶Zahra Ghodsi ⁷Seyed Behnam Jazayeri ²Aidin Shaker ⁸Mahdi Mohammadzadeh ⁹Laleh Bagheri ¹⁰Mohammad-Sajjad Lotfi ¹¹Salman Daliri ¹²Amir Azarhomayoun ²Homayoun Sadeghi-Bazargani ¹³Gerard O'reilly ¹⁴Vafa Rahimi-Movaghar¹⁵

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作者信息

1. Health Information Management Department,School of Allied Medical Sciences,Tehran University of Medical Sciences,Tehran,Iran;Sina Trauma and Surgery Research Center,Tehran University of Medical Sciences,Tehran,Iran
2. Sina Trauma and Surgery Research Center,Tehran University of Medical Sciences,Tehran,Iran
3. Department of Neurosurgery Lorestan University of Medical Sciences,Khoram-Abad,Iran
4. Sina Trauma and Surgery Research Center,Tehran University of Medical Sciences,Tehran,Iran;Department of Epidemiology and Biostatistics,School of Public Health,Tehran University of Medical Sciences,Tehran,Iran
5. Patient Safety Research Center,Clinical Research Institute,Urmia University of Medical Sciences,Urmia,Iran;Erasmus School of Health Policy & Management(ESHPM),Erasmus University Rotterdam,Rotterdam,the Netherlands
6. Sina Trauma and Surgery Research Center,Tehran University of Medical Sciences,Tehran,Iran;Brain and Spinal Cord Injury Research Center,Neuroscience Institute,Tehran University of Medical Sciences,Tehran,Iran;Students Scientific Research Center(SSRC),Tehran University of Medical Sciences,Tehran,Iran
7. Sina Trauma and Surgery Research Center,Tehran University of Medical Sciences,Tehran,Iran;Brain and Spinal Cord Injury Research Center,Neuroscience Institute,Tehran University of Medical Sciences,Tehran,Iran
8. Department of Neurosurgery,Arak University of Medical Sciences,Arak,Iran
9. Trauma Research Center,Kashan University of Medical Sciences,Kashan,Iran
10. Shahid Rahnemoun Hospital,Shahid Sadoughi University of Medical Sciences,Yazd,Iran
11. Trauma Nursing Research Centre,Faculty of Nursing and Midwifery Kashan University of Medical Sciences,Kashan,Iran
12. Clinical Research Development Unit,Imam Hossein Hospital,Shahroud University of Medical Sciences,Shahroud,Iran
13. Research Center for Evidence Based Medicine,Faculty of Medicine,Tabriz University of Medical Sciences,Tabriz,Iran;Road Traffic Injury Research Center,Tabriz University of Medical Sciences,Tabriz,Iran
14. School of Public Health and Preventive Medicine,Monash University,Melboume,Australia;National Trauma Research Institute,The Alfred,Melboume,Australia
15. Sina Trauma and Surgery Research Center,Tehran University of Medical Sciences,Tehran,Iran;Brain and Spinal Cord Injury Research Center,Neuroscience Institute,Tehran University of Medical Sciences,Tehran,Iran;Department of Neurosurgery,Shariati Hospital,Tehran University of Medical Sciences,Tehran,Iran;Universal Scientific Education and Research Network(USERN),Tehran,Iran;Institute of Biochemistry and Biophysics,University of Tehran,Tehran,Iran
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Abstract

Purpose:The purpose of the National Spinal Cord Injury Registry of Iran(NSCIR-IR)is to create an infrastructure to assess the quality of care for spine trauma and in this study,we aim to investigate whether the NSCIR-IR successfully provides necessary post-discharge follow-up data for these patients.Methods:An observational prospective study was conducted from April 11,2021 to April 22,2022 in 8 centers enrolled in NSCIR-IR,respectively Arak,Rasht,Urmia,Shahroud,Yazd,Kashan,Tabriz,and Tehran.Patients were classified into 3 groups based on their need for care resources,respectively:(1)non-spinal cord injury(SCI)patients without surgery(group 1),(2)non-SCI patients with surgery(group 2),and(3)SCI patients(group 3).The assessment tool was a self-designed questionnaire to evaluate the care quality in 3 phases:pre-hospital,in-hospital,and post-hospital.The data from the first 2 phases were collected through the registry.The post-hospital data were collected by conducting follow-up assessments.Telephone follow-ups were conducted for groups 1 and 2(non-SCI patients),while group 3(SCI patients)had a face-to-face visit.This study took place during the COVID-19 pandemic.Data on age and time interval from injury to follow-up were expressed as mean±standard deviation(SD)and response rate and follow-up loss as a percentage.Results:Altogether 1538 telephone follow-up records related to 1292 patients were registered in the NSCIR-IR.Of the total calls,918(71.05％)were related to successful follow-ups,but 38 cases died and thus were excluded from data analysis.In the end,post-hospital data from 880 patients alive were gathered.The success rate of follow-ups by telephone for groups 1 and 2 was 73.38％and 67.05％respectively,compared to 66.67％by face-to-face visits for group 3,which was very hard during the COVID-19 pandemic.The data completion rate after discharge ranged from 48％-100％,22％-100％and 29％-100％for groups 1-3.Conclusions:To improve patient accessibility,NSCIR-IR should take measures during data gathering to increase the accuracy of registered contact information.Regarding the loss to follow-ups of SCI patients,NSCIR-IR should find strategies for remote assessment or motivate them to participate in follow-ups through,for example,providing transportation facilities or financial support.

Key words

Follow-up studies/Spinal injuries/Spinal cord injuries/COVID-19/NSCIR-IR

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基金项目

Elite Researcher Grant Committee(972056)

National Institutes for Medical Research Development(NIMAD),Tehran,Iran()

Sina Trauma and Surgery Research Center,Tehran University of Medical Sciences,Tehran,Iran(97-02-38-39581)

National Spinal Cord Injury Registry of Iran()

Deputy of Research of the Ministry of Health and Medical Education(MOHME)()

出版年

2024

中华创伤杂志(英文版)

中华医学会

中华创伤杂志(英文版)

CSTPCDCSCD

影响因子：0.608

ISSN：1008-1275

参考文献量40

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