首页|ACMG STATEMENT br Stewardship of patient genomic data: A policy statement of the American College of Medical Genetics and Genomics (ACMG)
ACMG STATEMENT br Stewardship of patient genomic data: A policy statement of the American College of Medical Genetics and Genomics (ACMG)
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NSTL
Elsevier
Disclaimer: This statement is designed primarily as an educational resource for medical geneticists and other clinicians to help them provide quality medical services. Adherence to this statement is completely voluntary and does not necessarily assure a successful medical outcome. This statement should not be considered inclusive of all proper procedures and tests or exclusive of other procedures and tests that are reasonably directed to obtaining the same results. In determining the propriety of any specific procedure or test, clinicians should apply their own professional judgment to the specific clinical circumstances presented by the individual patient or specimen. Clinicians are encouraged to document the reasons for the use of a particular procedure or test, whether or not it is in conformance with this statement. Clinicians also are advised to take notice of the date this statement was adopted, and to consider other medical and scientific information that becomes available after that date. It also would be prudent to consider whether intellectual property interests may restrict the performance of certain tests and other procedures.
Data stewardshipData use agreementDe-identi fi ed genetic informationGenetic privacy
Best, Robert G.、Khushf, George、Rabin-Havt, Sara Schonfeld、Clayton, Ellen Wright、Grebe, Theresa A.、Hagenkord, Jill、Topper, Scott、Fivecoat, Jaime、Chen, Margaret、Grody, Wayne W.、ACMG Social Ethical Legal Issues C
NSTL
Elsevier
