Caregivers' decision‐making for health service utilisation across the Alzheimer's disease trajectory

扫码查看

原文链接

NSTL
Wiley-Hindawi

外文摘要：Abstract Health and social care services can enhance the community experiences of people with Alzheimer's disease and their caregivers but making decisions about service use is complex. Using a grounded theory methodology, we explored service use decision‐making in 40 spousal and adult children caregivers for people with Alzheimer's disease across the caregiving and disease trajectory. Participants' perception of their initial service interactions influenced their decision‐making process and use of services. Difficulties navigating the healthcare system and finding available services also influenced decision‐making. Caregivers make decisions to sustain care in the community that change throughout the caregiving and disease trajectory. Two key factors influence service use (a) the goals of caregiving and (b) the practicalities of accessing services. Both factors change across caregiving phases. By expanding our understanding of how caregivers make service use decisions, we can augment future practice to help caregivers access services that can better support them across the disease trajectory.

外文关键词：

Alzheimers diseaseCarersdecision‐makingdementia

作者：

Kristina M. Kokorelias、Monique A. M. Gignac、Gary Naglie、Nira Rittenberg、Jill I. Cameron

展开 >

作者单位：

Rehabilitation Sciences Institute,University of Toronto

Dalla Lana School of Public Health,University of Toronto

Department of Medicine and Institute of Health Policy, Management and Evaluation,University of

Department of Occupational Science and Occupational Therapy,University of Toronto

展开 >

出版年：

2022

DOI：

10.1111/hsc.13464

Health & social care in the community

SSCI

ISSN：0966-0410

年,卷(期)：2022.30(4)

被引量5
参考文献量22