系统性红斑狼疮患者自我管理能力现状及相关因素分析

Current status and influential factors of self-management ability in patients with systemic lupus erythematosus

王莉 ¹高超 ¹任欢欢 ¹沈艳平 ¹黄晓玮 ¹姚鸿 ¹韩丹丹¹

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作者信息

1. 北京大学人民医院风湿免疫科,北京 100044
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摘要

目的:了解系统性红斑狼疮(systemic lupus erythematosus,SLE)患者自我管理能力现状,分析影响SLE患者自我管理能力的相关因素.方法:选取2024年1月至3月在北京某三甲医院风湿免疫科门诊及病房就诊的SLE患者180例,采用一般资料问卷、SLE自我管理能力评估量表、自我效能感量表和家庭关怀度指数问卷进行问卷调查,了解SLE患者自我管理能力现状及相关影响因素.结果:有效回收问卷170份,自我管理能力总得分(90.94±14.26)分,其中89～110分数段的患者103例(60.6％),67～88分数段的患者60例(35.3％),0～66分数段的患者7例(4.1％);单因素分析结果显示,个人月收入、随诊频率、家庭关怀度指数、自我效能感与SLE自我管理能力得分差异具有统计学意义(P＜0.05);Spearman秩相关分析结果显示,家庭关怀度指数、自我效能感得分与SLE自我管理能力各维度得分及总分差异具有统计学意义(P＜0.001);采用多因素Logistic回归分析结果显示,家庭关怀度指数(OR=1.503,95％CI=1.186～1.906)、自我效能感(OR=1.103,95％CI=1.038～1.172)、个人月收入5 000～8 000 元/月(OR=0.120,95％CI=0.022～0.645)、1～2 周复诊频率(OR=0.044,95％CI=0.003～0.575)是SLE患者的自我管理能力的影响因素.结论:SLE患者自我管理能力水平良好,慢病管理过程中,医护人员应制定细致、分层的管理措施,以进一步提升自我管理能力,建立良好的家庭关怀度指数与患者自我效能感有助于提高自我管理能力、有效管理疾病、提高生活质量.

Abstract

Objective:To investigate the current status of self-management ability in patients with sys-temic lupus erythematosus(SLE),and to analyze the related factors affecting the self-management ability of SLE patients.Methods:A total of 180 SLE patients who were selected from the outpatient department and ward of the Department of Rheumatology and Immunology of a Tertiary Hospital in Beijing from January 2024 to March 2024.General information questionnaire,SLE self-management ability assessment scale,general self-efficacy scale(GSES)and family concern index questionnaire(APGAR)were used for questionnaire investigation,so as to investigate the current status and related influencing factors of self-management ability in patients with SLE.Results:A total of 170 questionnaires were effectively collected,and the total score of self-management ability was(90.94±14.26)points,of which 103 pa-tients were 89-110 points,accounting for 60.6％;60 patients were 67-88 points,accounting for 35.3％;7 patients were 0-66 points,accounting for 4.1％;The results of univariate analysis showed that personal monthly income,follow-up frequency,family caring index,self-efficacy and SLE self-management ability score had statistical significance(P＜0.05).Spearman rank correlation analysis showed that family caring index,self-efficacy scores were positively correlated with the scores of various dimensions and the total score of SLE self-management scores(P＜0.001).Multivariate Logistic regres-sion analysis showed that family caring index(OR=1.503,95％CI=1.186-1.906),self-efficacy(OR=1.103,95％CI=1.03 8-1.172),personal monthly income of 5 000-8 000 yuan/month(OR=0.120,95％CI=0.022-0.645)and 1-2 weeks return frequency(OR=0.044,95％CI=0.003-0.575)were significant influencing factors for SLE patients'self-management ability.Conclusion:The re-sults of this study indicate that patients with SLE have a good level of self-management ability.In the process of chronic disease management,medical staff should formulate detailed and layered intervention measures to further improve self-management ability with SLE patients,and at the same time,help SLE patients establish good family caring index and patient self-efficacy,which is conducive to improving self-management ability of SLE patients,so as to effectively promote disease management and improve the quality of life.

关键词

系统性红斑狼疮/自我管理能力/自我效能感/家庭关怀度指数

Key words

Systemic lupus erythematosus/Self-management/Self-efficacy/Family concern index

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出版年

2024

北京大学学报(医学版)

北京大学

北京大学学报(医学版)

CSTPCDCSCD北大核心

影响因子：1.681

ISSN：1671-167X

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