多形性胶质母细胞瘤的临终住院缓和医疗照护:一例的经验和启示

End-of-Life Inpatient Palliative Care for Glioblastoma Multiforme:Lessons Learned from One Case

肖志源 ¹孙燕霞 ¹许冬蕊 ¹宁晓红 ²王裕 ¹张毅 ¹马文斌¹

扫码查看

作者信息

1. 神经外科,中国医学科学院北京协和医院,北京 100073,中国
2. 缓和医学中心,中国医学科学院北京协和医院,北京 100073,中国
折叠

摘要

多形性胶质母细胞瘤(glioblastoma multiforme,GBM)是最常见的恶性原发性脑肿瘤,预后差,生存期有限.GBM患者对缓和医疗具有很高的需求.在本病例中,我们为一名21岁女性GBM患者在生命末期提供了住院缓和医疗服务,包括症状管理、精神和心理支持,对其家庭成员的提供了社会心理和临床决策支持,以及对其家庭在患者离世前后给予丧亲管理.此外,我们还为家属提供了全面的临终心理准备,并协助家属度过哀伤期.本研究旨在为恶性脑肿瘤患者缓和医疗的临床实施提供借鉴和参考.

Abstract

Glioblastoma multiforme(GBM)is the most common malignant primary brain tumor with a poor prognosis and limited survival.Patients with GBM have a high demand for palliative care.In our present case,a 21-year-old female GBM patient received inpatient palliative care services including symptom management,mental and psychological support for the patient,psychosocial and clinical decision support for her family members,and pre-and post-death bereavement management for the family.Furthermore,we provided the family members with comprehensive psychological preparation for the patient's demise and assisted the patient's family throughout the mourning period.The aim of this study is to provide a reference and insights for the clinical implementation of palliative care for patients with malignant brain tumors.

关键词

胶质母细胞瘤/多形性胶质母细胞瘤/缓和医疗/生命末期照护

Key words

glioblastoma/glioblastoma multiforme/palliative care/end-of-life care

引用本文复制引用

出版年

2024

中国医学科学杂志(英文版)

中国医学科学院,中国协和医科大学

中国医学科学杂志(英文版)

CSTPCD

影响因子：0.533

ISSN：1001-9294

段落导航