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赋能教育对先天性食管闭锁患儿术后生存质量的影响

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目的:探讨赋能教育对先天性食管闭锁患儿术后生存质量的影响.方法:开展平行对照试验,动态纳入2020年3月至2023年2月于本院就诊的86例先天性食管闭锁患儿为研究对象,按照入组先后顺序分为对照组(n=42)和试验组(n=44).对照组接受常规健康宣教,试验组在对照组基础上对患儿家长实施赋能教育,干预期为3个月.比较2组干预前后生存质量、生长发育、术后并发症发生情况以及家长疾病知识掌握度和护理满意度.结果:干预后,试验组生存质量总分高于干预前[87.50(79.32,97.22)vs.78.17(75.00,88.54)],在生理、心理情感、社会交往和学校角色领域得分均高于干预前,均P<0.05;与对照组相比,试验组生存质量总分高于对照组[87.50(79.32,97.22)vs.79.76(71.88,89.29)],在生理、心理情感、社会交往领域得分均高于对照组,均P<0.05.干预后,试验组体质指数[15.70(15.08,16.48)]优于干预前的[15.05(14.35,16.00)]和对照组的[14.85(13.60,16.00)],均P<0.05.结论:赋能教育能有效提高先天性食管闭锁患儿术后生存质量,降低呼吸困难的发生率以及吞咽困难和呛咳的发生频率,缓解术后并发症带给患儿的不适感受,提升患儿术后体质指数,提高家长疾病知识掌握度和护理满意度.
Effects of empowerment education on postoperative quality of life in children with congenital esophageal atresia
Objective:To investigate the effects of empowerment education on postoperative quality of life in children with congenital esophageal atresia.Methods:Using a parallel-controlled design,we dynamically enrolled 86 children with congenital esophageal atre-sia who visited the Children's Hospital of Chongqing Medical University from March 2020 to February 2023.They were assigned into control group(n=42)and experimental group(n=44)according to the order of enrollment.The control group received conventional health education,while for the experimental group,in addition to the conventional intervention,empowerment education was adminis-tered to the parents of the children,for a period of 3 months.The two groups were compared in terms of quality of life before and after intervention,growth and development,postoperative complications,and parents'knowledge of the disease and satisfaction with nursing care.Results:After intervention,the experimental group showed a significantly higher total score of quality of life[87.50(79.32,97.22)vs.78.17(75.00,88.54)]and significantly higher scores in the physical domain,psycho-emotional domain,social interaction,and school roles(all P<0.05);and compared with the control group,the experimental group also had a significantly higher total score of quality of life[87.50(79.32,97.22)vs.79.76(71.88,89.29)]as well as significantly higher scores in the physical,psycho-emotional,and social interaction domains(all P<0.05).After the intervention,the body mass index of the experimental group was[15.70(15.08,16.48)],which was significantly better than the pre-intervention level[15.05(14.35,16.00)]and that of the control group[14.85(13.60,16.00);bothP<0.05].The experimental group had signifi-cantly less frequent dyspnea(22.73%vs.42.86%)and dysphagia and bucking as well as a significantly higher level of disease knowl-edge and degree of satisfaction with nursing care compared with the control group(all P<0.05).Conclusion:Empowerment education can effectively improve the postoperative quality of life of children with congenital esophageal atresia;reduce the incidence of dys-pnea,dysphagia,and bucking;alleviate the discomfort caused by postoperative complications;increase the body mass index after sur-gery;and improve parents'disease knowledge and satisfaction with care.

empowerment educationcongenital esophageal atresiapostoperativechildrenquality of life

代禄润、莫霖、申玉洁、周雅婷

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重庆医科大学附属儿童医院心胸外科

儿童发育疾病研究教育部重点实验室

儿科学重庆市重点实验室

国家儿童健康与疾病临床医学研究中心

儿童发育重大疾病国家国际科技合作基地,重庆 400014

重庆医科大学附属儿童医院门诊部

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赋能教育 先天性食管闭锁 术后 儿童 生存质量

重庆市自然科学基金面上资助项目

CSTB2022NSCQ-MSX0082

2024

重庆医科大学学报
重庆医科大学

重庆医科大学学报

CSTPCD北大核心
影响因子:0.724
ISSN:0253-3626
年,卷(期):2024.49(7)