Objective To explore the disease experiences in patients with glioma,identify the patients'illness experiences and care needs,and provide the basis for supporting patients to accept the disease and formulating targeted nursing interventions.Methods A descriptive qualitative research approach was used.Using purposive sampling,12 patients with glioma were selected from Henan Provincial People's Hospital for semi-structured interviews from June 2022 to April 2023.There were 7 males and 5 females,aged 31 to 69 years.The Colaizzi's 7-step analysis method was employed to identify and extract the themes.Results Five main themes were identified from the illness experiences and needs:the urgent need for related health education,health education content(treatment measures,recurrence knowledge,postoperative rehabilitation content,healthy behaviors and daily lifestyle,and postoperative time and intensity of return to work),favoring of"Internet+"follow-up mode,desire for professional and continuous treatment and follow-up services,and importance of family or caregivers'support.Conclusions Patients with glioma have diverse disease experiences and needs due to different disease cognition,different medical conditions,and insufficient social support.Physicians should strengthen the population's health education,improve the disease cognition,strengthen the family support,build an"Internet+"medical platform,and promote the construction of professional,personalized,and accurate treatment and follow-up systems.
维普
万方数据