Nursing care for a child with X-linked adrenoleukodystrophy undergoing hematopoietic stem cell transplantation
The overall nursing experience of a child with X-linked adrenoleukodystrophy who received allogeneic hematopoietic stem cell transplantation was summarized.The main nursing measures were as below.(1)Preparation before transplantation:early identification of changes in the conditions and comprehensive nursing evaluation;strengthening education on disease and transplant related knowledge,providing personalized psychological care interventions,and ensuring the patients'and their families'psychological health.(2)Nursing during transplantation:strict medication management during the pre-treatment period of transplantation to ensure medication safety;strictly implementing sterile procedures and safely administering hematopoietic stem cells.(3)Post transplantation management:close monitoring and early detection and management of transplant related complications;strictly implementing infection prevention and control measures;providing targeted health education and continuous care.After 68 days'careful treatment and care,the patient was successfully implanted and discharged with stable conditions.
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