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终末期原发性肝癌患者家属心理应激状况及影响因素分析

Analysis of psychological stress status in family members of end-stage primary liver cancer patients and influencing factors

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目的 调查终末期原发性肝癌患者家属心理应激状况,探究影响因素.方法 本研究为前瞻性研究,选取2021年4月至2023年3月104例终末期原发性肝癌患者的主要照顾者为研究对象,采用家属应激量表(RSS)调查主要照顾者心理应激状况,设计主要照顾者基线资料填写表并记录研究所需资料,分析终末期原发性肝癌患者家属心理应激状况的影响因素.结果 共发放104份调查问卷,回收有效问卷104份,有效回收率为100%.104例终末期原发性肝癌患者主要照顾者RSS评分为(21.52±1.84)分,总体处于中高水平.主要照顾者要照顾其他家人、家庭年收入<10万、社会支持度低、病耻感强的主要照顾人的RSS评分高于主要照顾者无需照顾其他家人、家庭年收入≥ 10万、社会支持度中等/高、病耻感中等/弱者,差异有统计学意义(P<0.05);其他不同资料特征的患者RSS评分比较,差异无统计学意义(P>0.05).多元线性回归分析显示,主要照顾者要照顾其他家人、家庭年收入低、社会支持度低、病耻感强均为终末期原发性肝癌患者家属心理应激强的影响因素(P<0.05).结论 终末期原发性肝癌患者家属心理应激普遍呈中高水平,可能受家属要照顾其他家人、家庭年收入、社会支持度、病耻感等因素影响.
Objective To investigate the psychological stress status in family members of end-stage primary liver cancer patients and its influencing factors.Methods This was a prospective study that included 104 primary caregivers of end-stage primary liver cancer patients from April 2021 to March 2023.The relative stress scale(RSS)was used to investigate the psychological stress status of the main caregivers.The baseline data of the main caregivers were recorded by a self-designed questionnaire.The influencing factors for the psychological stress status of the family members of patients with end-stage primary liver cancer were analyzed.Results A total of 104 questionnaires were distributed,and 104 valid questionnaires were collected,with an effective recovery rate of 100.00%.After evaluation,the RSS score of the primary caregivers for 104 end-stage primary liver cancer patients was 21.52±1.84 points,indicating a medium-to-high level.The RSS scores of primary caregivers who need to take care of other family members,with an annual family income of less than 100,000 yuan,low social support,and strong sense of stigma were significantly higher than those of counterparts(P<0.05).There was no significant difference in the RSS scores among primary caregivers with other baseline characteristics(P>0.05).The multiple linear regression analysis showed that primary caregivers who need to take care of other family members,low annual family income,low social support,and strong sense of stigma were all influencing factors for the strong psychological stress of the family members of end-stage primary liver cancer patients(P<0.05).Conclusion The psychological stress of family members of end-stage primary liver cancer patients is generally at a moderate-to-high level,and influenced by primary caregivers who need to take care of other family members,low annual family income,low social support,and strong sense of stigma.

primary liver cancerend stageprimary caregiverspsychological stresssense of stigmasocial support

郑旭、赵亚莉、孙楠楠、张倩、马颖慧

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100069 北京市,首都医科大学附属北京佑安医院肿瘤内科

原发性肝癌 终末期 主要照顾者 心理应激 病耻感 社会支持

2024

河北医药
河北省医学情报研究所

河北医药

CSTPCD
影响因子:1.075
ISSN:1002-7386
年,卷(期):2024.46(17)