Effect of family participatory nursing intervention on negative emotions and quality of life in children with terminal stage of hematological malignancy under view of palliative care
Objective To observe the effect of family participatory nursing intervention on negative emotions and quality of life in children with terminal stage of hematological malignancy(HM)under view of palliative care.Methods Eighty HM children admitted to our hospital from August 2020 to August 2023 were enrolled.They were divided into a control group(routine nursing care,n=40)and a study group(routine nursing care+family participatory nursing intervention under view of palliative care,n=40)according to a random number table.The intervention effects were evaluated using the Screen for Child Anxiety Related Emotional Disorders(SCARED),the Depression Self-Rating Scale for Children(DSRSC),and the Pediatric Quality of Life Inventory 4.0(PedsQL4.0).Results Before the intervention,there were no significant differences in the scores of the SCARED,DSRSC,and PedsQL4.0 between the two groups(P＞0.05).After the intervention,the scores of the SCARED and DSRSC in the study group were significantly lower than those in the control group,while the scores of the PedsQL4.0 in the study group were significantly higher(allP＜0.05).Conclusion Family participatory nursing intervention under view of palliative care can effectively alleviate anxiety and depression and improve their quality of life in children with terminal stage of HM.
hematological malignancypalliative carechildrenquality of life
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