罕见病研究2024，Vol.3Issue(2) ：164-167.DOI:10.12376/j.issn.2097-0501.2024.02.002

北京协和医院罕见病医学科建科初探

Preliminary Exploration on the Establishment of the Department of Rare Diseases at Peking Union Medical College Hospital

沈敏 张抒扬
罕见病研究2024，Vol.3Issue(2) ：164-167.DOI:10.12376/j.issn.2097-0501.2024.02.002
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北京协和医院罕见病医学科建科初探

Preliminary Exploration on the Establishment of the Department of Rare Diseases at Peking Union Medical College Hospital

沈敏 1张抒扬2
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作者信息

  • 1. 中国医学科学院北京协和医院罕见病医学科,北京 100730;中国医学科学院北京协和医院疑难重症及罕见病全国重点实验室,北京 100730
  • 2. 中国医学科学院北京协和医院心内科,北京 100730;中国医学科学院北京协和医院疑难重症及罕见病全国重点实验室,北京 100730;中国医学科学院北京协和医院国家罕见病医疗质量控制中心,北京 100730
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摘要

北京协和医院成立罕见病医学科是罕见病学科发展的重要事件.罕见病医学科的建立将进一步发挥北京协和医院在罕见病领域的突出影响力和"诊-疗-研"领先优势,助力医院高质量发展,更好地造福罕见病患者和助力罕见病专科人才培养,推进中国罕见病防治事业发展.本文对北京协和医院罕见病医学科建科的工作基础、意义及学科发展规划进行初步探讨.

Abstract

The establishment of the Department of Rare Diseases at Peking Union Medical College Hospital(PUMCH)is a landmark in the disciplinary development of the rare diseases.The establishment of the department will booster the prominence of the influence and leading position of the PUMCH in the field of rare diseases.In addition,the department is instrumental in the development of the hospital of high-quality.The department aims at delivery of better medical care for patients with rare diseases,the training of special-ists in rare diseases,and avancement of the preventing and treating rare diseases in China.This paper pre-liminarily discusses the working basis,significance and discipline development plan of the department of rare diseases at PUMCH.

关键词

罕见病/罕见病医学科/多学科团队

Key words

rare diseases/department of rare diseases/multidisciplinary team

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基金项目

国家重点研发计划(2022YFC2703100)

中央高水平医院临床科研业务费项目(2022-PUMCH-D-002)

中央高水平医院临床科研业务费项目(2022-PUMCH-B-013)

中国医科院医学与健康科技创新工程项目(2021-I2M-1-003)

中央专项彩票公益金支持罕见病诊疗水平能力提升项目(UPWARDS)()

出版年

2024
罕见病研究

罕见病研究

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