Stigma of Main Caregivers of Young Patients with Epilepsy
Objective:To know the stigma experience of the main caregivers of young patients with epilepsy,and to provide reference for formulating targeted intervention measures.Methods:The main caregivers who accompanied and cared for young patients with epilepsy from March 2022 to August 2022 in the hospital were selected as the research objects.Qualitative research methods were used,semi-structured interviews were used to collect research data.Thematic analysis was used to analyze the data.Results:The main caregivers of young patients with epilepsy mainly have the experiences,such as helplessness,anxiety,fear,guilt and discrimination,etc.;and conduct behaviors,such as concealing the patient's disease,self-regulation of psychological state;and believe that the lack or improper cognition of the public about epilepsy is the cause of their own disease shame.Conclusion:The main caregivers of young patients with epilepsy have complex experience of disease and shame,and medical staff should provide necessary support.
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NSTL
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