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噬血细胞综合征患儿家庭复原力现状及其影响因素

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目的 探究噬血细胞综合征(HPS)患儿家庭复原力现状及其影响因素,为今后制定干预策略提供依据.方法 采用方便抽样法,以2022年1月至2023年1月郑州大学第一附属医院收治的87例HPS患儿家属为调查对象,采用家庭复原力评估量表(FRAS)评估其家庭复原力,多元线性回归分析HPS患儿家属家庭复原力影响因素.结果 调查对象FRAS总分为(109.53±8.64)分,其中赋予逆境意义(5.63±1.36)分,维持积极态度(15.11±4.50)分,使用社会资源(18.54±4.81)分,家庭沟通和问题解决(70.25±8.75)分.不同受教育程度、家庭人均月收入、社会支持评定量表(SSRS)评分、一般自我效能感量表(GSES)评分、小儿危重病例评分调查对象FRAS评分比较,差异有统计学意义(P<0.05).受教育程度、家庭人均月收入、SSRS评分、GSES评分、小儿危重病例评分是FRAS评分的独立影响因素(P<0.05).结论 HPS患儿家属家庭复原力较差,主要与受教育程度、家庭人均月收入、SSRS评分、GSES评分、小儿危重病例评分有关,建议临床根据上述因素制定干预措施,缓解负面情绪,提高家庭复原力.
Current Status and Influencing Factors of Family Resilience in Children with Hemophagocytic Syndrome
Objective To explore the status quo and influencing factors of family resilience in children with hemophagocytic syndrome(HPS),and to provide evidence for future intervention strategies.Methods A total of 87 family members of children with HPS admitted to the First Affiliated Hospital of Zhengzhou University from January 2022 to January 2023 were investigated by convenience sampling method.Family resilience assessment scale(FRAS)was used to assess family resilience.Multiple linear regression was used to analyze the influencing factors of family resilience of family members with HPS.Results The total FRAS score of the respondents was(109.53±8.64)points,including(5.63±1.36)points for giving meaning to adversity,(15.11±4.50)points for maintaining a positive attitude,(18.54±4.81)points for using social resources,and(70.25±8.75)points for family communication and problem solving.There were statistical differences in FRAS scores of children with different levels of education,family per capita monthly income,social support rating scale(SSRS)scores,general self-efficacy scale(GSES)scores and critical case scores(P<0.05).Education level,per capita monthly family income,SSRS score,GSES score and critical case score were independent influencing factors of FRAS score(P<0.05).Conclusion The family resilience of the family members of children with HPS is poor,which is mainly related to the educational level,monthly income of the family per capita,SSRS score,GSES score and critical case score of children.It is suggested that clinical scholars develop intervention measures according to the above factors to alleviate negative emotions and improve family resilience.

hemophagocytic syndromefamily resiliencecoping styleinfluencing factor

魏海霞

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郑州大学第一附属医院儿童内科,河南郑州 450000

噬血细胞综合征 家庭复原力 应对方式 影响因素

2024

河南医学研究
河南省医学科学院

河南医学研究

影响因子:0.979
ISSN:1004-437X
年,卷(期):2024.33(24)