首页|视神经脊髓炎谱系疾病患者疾病认同量表的编制及信效度检验

视神经脊髓炎谱系疾病患者疾病认同量表的编制及信效度检验

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目的 编制视神经脊髓炎谱系疾病(NMOSD)患者疾病认同量表,并检验其信效度。方法 在文献回顾法和半结构式访谈法的基础上,通过专家函询和预调查,形成量表初稿。2022年7-8月便利选取204例NMOSD患者进行问卷调查,2周后从中随机抽取20例患者进行重测,检验量表的信效度。结果 最终量表包含4个维度,即拒绝、接受、吞噬和充实,共17个条目。探索性因子分析共提取4个公因子,累计方差贡献率为78。286%;量表平均内容效度指数为0。920,条目内容效度指数为0。833~1。000;量表总的Cronbach's α系数为0。916,分半信度为0。784,2周后重测信度为0。869。结论 本研究编制的NMOSD患者疾病认同量表具有良好的信效度,适用于相关人群疾病认同的评估。
Development of illness identity scale for patients with neuromyelitis optica spectrum disorders and its test of reliability and validity
Objective To develop the illness identity scale for patients with neuromyelitis optica spectrum disor-ders(NMOSD),and test its reliability and validity.Methods Based on the literature review and semi-structured in-terview,a formal test scale was formed through expert correspondence and pilot survey.A total of 204 patients with NMOSD were selected by convenience sampling and investigated with the questionnaire survey from July to March 2022,and 20 patients were randomly selected for retest after 2 weeks to test the reliability and validity of the scale.Results The final version of the scale included 4 dimensions,namely,rejection,acceptance,engulfment,and enrich-ment,with a total of 17 items.Exploratory factor analysis extracted 4 common factors,and the cumulative variance contribution rate was 78.286%.The average content validity index of the scale was 0.92,and the content validity index of items was 0.833~1.000.The total Cronbach's α coefficient of the scale was 0.916,the split-half reliability was 0.784,and the retest reliability was 0.869 after 2 weeks.Conclusion The NMOSD patient's illness identity scale developed in this study has good reliability and validity,which is suitable for the evaluation of illness identity of relat-ed population.

rare diseasesneuromyelitis optica spectrum disordersillness identityscalereliabilityvalidity

韩汶轩、刘雪华、贾朝朝、刘化侠

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山东第一医科大学山东省医学科学院,山东济南 271016

罕见病 视神经脊髓炎谱系疾病 疾病认同 量表 信度 效度

2024

护士进修杂志
贵州省医药卫生学会办公室

护士进修杂志

CSTPCD
影响因子:2.59
ISSN:1002-6975
年,卷(期):2024.39(2)
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