摘要
目的 探讨癫痫患儿主要照顾者创伤后成长的体验和感受.方法 采用目的抽样法选取 13 例癫痫患儿的主要照顾者作为研究对象,运用质性研究中的现象学研究方法进行半结构式访谈,采用Colaizzi分析法对资料进行分析并提炼归纳主题.结果 癫痫患儿主要照顾者创伤后成长体验可归纳为 4 个主题:积极应对(积极的认知态度、增强的个人力量)、人际交往改善(家庭关系更加和谐、亲子关系更为亲密、同理心及利他意识的提升)、人生感悟加深(珍惜生活、事件优先排序的重整、人事态度的转变)及感知社会支持(家人与好友的支持、医护人员的支持、病友同盟化的支持).结论 癫痫患儿主要照顾者在感知创伤事件产生负面情绪的同时,也存在创伤后成长的积极体验,医护人员应及时识别照顾者的积极心理体验,充分发掘创伤后成长的潜能,并引导其采取积极有效的应对策略,以期提高创伤后成长水平,提升照顾能力,最终提高患儿和自身的生活质量.
Abstract
Objective To explore the post-traumatic growth experiences and feelings of the primary caregivers of children with epilepsy.Methods Thirteen primary caregivers of children with epilepsy were selected as the research subjects by using purposive sampling method,and semi-structured interviews were conducted by using phenomenological research methods in qualitative research.Colaizzi analysis method was used to analyze the data and extract and summarize themes.Results The post-traumatic growth experience of the main caregivers of children with epilepsy could be summarized into 4 themes:positive coping(positive cognitive attitude and enhanced personal strength),improvement of interpersonal communication(more harmonious family relationship,closer parent-child relationship,and increased empathy and altruistic awareness),deepening of life insights(cherishing life,reorganizing event prioritization,and changing personnel attitudes),and perceived social support(support from family and friends,support from medical staff,and support from patient alliances).Conclusion The primary caregivers of children with epilepsy perceive negative emotions caused by traumatic events,as well as positive experiences of post-traumatic growth.Medical staff should promptly identify the positive psychological experiences of caregivers,fully explore their potential for post-traumatic growth,and guide them to adopt positive and effective coping strategies in order to improve the level of post-traumatic growth,enhance their caregiving abilities,and ultimately improve the quality of life of the children and themselves.
国家科技期刊平台
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