教育生物学杂志2024,Vol.12Issue(5) :365-369.DOI:10.3969/j.issn.2095-4301.2024.05.005

以家庭为中心的出院准备计划对先天性消化道畸形患儿出院准备度的影响

Impact of family-centered readiness for discharge plan on discharge preparation in children with congenital gastrointestinal malformations

巩树梅 唐春燕 严谨 唐巧丽 俞群
教育生物学杂志2024,Vol.12Issue(5) :365-369.DOI:10.3969/j.issn.2095-4301.2024.05.005

以家庭为中心的出院准备计划对先天性消化道畸形患儿出院准备度的影响

Impact of family-centered readiness for discharge plan on discharge preparation in children with congenital gastrointestinal malformations

巩树梅 1唐春燕 1严谨 1唐巧丽 1俞群1
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作者信息

  • 1. 上海交通大学医学院附属新华医院(中国 上海 200092)
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摘要

目的 探讨以家庭为中心的出院准备计划对先天性消化道畸形患儿出院准备度的影响.方法 采用类实验设计,上海交通大学医学院附属新华医院儿外科收治的先天性消化道畸形患儿按住院时间顺序分为对照组和干预组,每组 33 例.对照组,入院时发放居家康复知识图文手册,住院期间由责任护士承担患儿的所有护理任务,出院时给予常规宣教;干预组,实施以家庭为中心的出院准备计划,基本原则是通过授权父母参与共同照护患儿.向患儿父母发放相关问卷进行调查,比较2组的出院准备度、出院指导质量评价及父母的焦虑状况.结果 出院时,干预组的出院准备度总分及除期望得到的支持维度以外的其他维度得分、出院指导质量评价得分均高于对照组(P<0.05);出院时及居家照护后 2 周,干预组患儿父母的焦虑水平均显著低于对照组(P<0.01).结论 对先天性消化道畸形患儿实施以家庭为中心的出院准备计划,可有效提高出院准备度并缓解父母的焦虑情绪,有助于患儿与父母顺利应对出院早期的困境.

Abstract

Objective To explore the impact of family-centered readiness for discharge plan on discharge preparation in children with congenital gastrointestinal malformations.Methods By using quasi-experimental design,children with congenital gastrointestinal malformations admitted to the Department of Pediatric Surgery,Xinhua Hospital,Shanghai Jiao Tong University School of Medicine,were divided into a control group and an intervention group based on the order of hospitalization time,with 33 cases in each group.The control group received a home-based rehabilitation knowledge manual with text and images upon admission.During hospitalization,the responsible nurse was responsible for all nursing tasks for the child,and routine education was provided at discharge.The intervention group implemented a family-centered readiness for discharge plan,with the basic principle of authorizing parents to participate in the joint care.Relevant questionnaires were distributed to the parents,and the discharge preparation,discharge guidance quality evaluation,and parents'anxiety status were compared between the two groups.Results At discharge,the total score of discharge preparation and the scores of all dimensions except the expected support dimension,as well as the score of discharge guidance quality in the intervention group were significantly higher than those in the control group(P<0.05).At discharge and 2 weeks after home care,the anxiety levels of parents of the children in the intervention group were significantly lower than those in the control group(P<0.01).Conclusion Implementing a family-centered readiness for discharge plan for children with congenital gastrointestinal malformations can effectively improve discharge preparation and alleviate parents'anxiety and help both the children and parents smoothly cope with early discharge challenges.

关键词

先天性消化道畸形/以家庭为中心的护理/出院准备计划

Key words

congenital gastrointestinal malformations/family-centered care/readiness for discharge plan

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基金项目

上海交通大学医学院科技基金(Jyh1808)

上海交通大学护理学院护理高原学科建设百人计划(Hlgy1815kyx)

上海交通大学医学院附属新华医院护理学科人才培养计划(HLXKRC2021003)

出版年

2024
教育生物学杂志
上海交通大学医学院附属新华医院

教育生物学杂志

CSTPCD
影响因子:0.225
ISSN:2095-4301
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