Objective This paper aims to interview parents of children with attention deficit hyperactivity disorder(ADHD)to explore their firsthand experiences in providing healthcare for their children.The findings will provide a ba-sis for developing a multi-dimensional and comprehensive intervention program for families coping with ADHD.Methods A phenomenological study was conducted from April to August 2022 in the pediatric wards of the First Affilia-ted Hospital of Zhengzhou University.Purposive sampling was adopted,and individual semi-structured interviews were conducted among 20 parents of children with ADHD.The interviews were conducted until data saturation was achieved.The interview guideline was formulated based on a literature review,group discussion,and pre-interview.The interviews were audio-recorded,and the data were transcribed and managed using Nvivo12 software.Finally,the data were analyzed using Colaizzi's 7-step analysis method.Results Five themes were emerged from the data analysis:(1)Difficulty in symptom management including multiple coexisting symptoms,highlighting the significant difficulty parents face in symp-tom management due to their lack of symptom management skills.(2)Heavy caregiving burden including subjective and objective burdens.(3)High psychological pressure including elevated levels of anxiety and depression experienced by parents,as well as the sense of uncertainty in illness and concern about the child's growth and development.(4)Mis-perceptions including the belief that ADHD will resolve on its own and misattribution.(5)Multiple needs including pro-fessional guidance from medical staff and the desire for support from family,school,and social network.Conclusion The parents of ADHD children faced many challenges and have many needs.Medical staff should provide targeted profes-sional guidance,pay attention to their physical and mental feelings,and offer emotional support.The support system with the interaction between hospitals,families,and schools for children with ADHD should be developed,aiming to meet the needs of prevention and treatment ADHD in children.
Attention deficit hyperactivity disorderCaregiving experienceParentsCaregiversQualitative study
维普
万方数据
