首页|炎症性肠病患者的疾病痛苦及其影响因素研究

炎症性肠病患者的疾病痛苦及其影响因素研究

Disease distress and its influencing factors in patients with inflammatory bowel disease

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目的 调查炎症性肠病患者的疾病痛苦现状并分析其影响因素,为干预提供科学依据.方法 选取 2021 年 1 月至 2022 年 12 月在某 2 家三级甲等综合医院就诊或住院的 240 例炎症性肠病患者作为研究对象,采用一般资料调查表、炎症性肠病痛苦量表(the inflammatory bowel disease distress scale,IBD-DS)、社会支持量表(social support rating scale,SSRS)和一般自我效能感量表(general self-efficacy scale,GSES)进行调查,并采用多重线性回归分析其影响因素.结果 235 例炎症性肠病患者完成研究.炎症性肠病患者疾病痛苦(75.8±4.9)分,处于中等偏下水平,并与社会支持和自我效能感呈负相关.婚姻状况、病程、社会支持、自我效能感和疾病活动度是炎症性肠病患者疾病痛苦水平的影响因素(均P<0.01),共同解释其83.6%的变异.结论 炎症性肠病患者疾病痛苦中等偏低,需重点关注未婚、病程较长、社会支持和自我效能感较低、疾病活动度高的患者,并采取针对性措施减少其疾病痛苦.
Objective To investigate current situation and the influencing factors of disease distress suffered by patients with inflammatory bowel disease hence to provide a foundation for intervention.Methods A total of 240 patients with inflammatory bowel disease who visited or were hospitalized in two Grade III and Class A hospitals from January 2021 to December 2022 were selected as research subjects.General information questionnaire,inflammatory bowel disease distress scale(IBD-DS),social support rating scale(SSRS),general self-efficacy scale(GSES),were used in the survey among the patients.Multiple linear regression were used to explore the influencing factors.Results IBD-DS scores among 235 patients were found from 65 to 93,with an average of 75.8±4.9,at a medium to low level.Pearson correlation analysis and multiple linear regression revealed that marital status,disease duration,SSRS scores,GSES scores and disease activity were the independent risk factors in disease distress,toally explaining 83.6%its variance(P<0.01).Conclusion Patients with inflammatory bowel disease generally suffer a moderate to low level of disease distress.It is necessary to focus on the patients who are unmarried,have a long course of disease,have low social support and self-efficacy,and have high disease activity,and take targeted measures to reduce their disease suffering.

inflammatory bowel diseasedisease distresscrohn's diseaseulcerative colitiscross-sectional study

吴燕、陆敏敏、张燕楠

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南通市第五人民医院,江苏南通,226361

南通大学附属医院,江苏南通,2263001

炎症性肠病 疾病痛苦 克罗恩病 溃疡性结肠炎 横断面调查

2024

现代临床护理
中山大学

现代临床护理

CSTPCD
影响因子:1.317
ISSN:1671-8283
年,卷(期):2024.23(8)
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