Genetic screening for deafness is an important means to prevent hereditary deafness,which has attracted increasing social attention.However,there are many ethical issues associated with its application.The high price leads to the uneven distribution of resources,and some groups are unable to enjoy this screening service fairly.Inaccurate test results violate the right to health of the person being tested.The implementation of informed consent is not in place,and it is difficult to protect the rights and interests of the examinee.Fetal choice raises ethical controversy.The risk of privacy leakage cannot be ignored.There is a shortage of full-time genetic counseling talents,and the quality of counseling is uneven.Genetic discrimination against deafness also exists.It is proposed to increase social investment,protect the right to health of the examinee,standardize informed consent,respect the right of the examinee to choose,protect the privacy of the examinee,strengthen the construction of the team of genetic counselors,raise public awareness,and eliminate genetic discrimination.
NETL
NSTL
万方数据
