医学与哲学2024,Vol.45Issue(18) :59-63.DOI:10.12014/j.issn.1002-0772.2024.18.12

患者自组织中的志愿互助与健康赋能过程——以北京H癌症患者自组织为例

Voluntary Mutual Assistance and Health Empowerment Processes in Patient Self-Organization:Take the H Self-organization of Cancer Patients in Beijing for Example

刘蔚玮
医学与哲学2024,Vol.45Issue(18) :59-63.DOI:10.12014/j.issn.1002-0772.2024.18.12

患者自组织中的志愿互助与健康赋能过程——以北京H癌症患者自组织为例

Voluntary Mutual Assistance and Health Empowerment Processes in Patient Self-Organization:Take the H Self-organization of Cancer Patients in Beijing for Example

刘蔚玮1
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作者信息

  • 1. 北京工业大学社会学院 北京 100124
  • 折叠

摘要

对癌症自组织中患者之间的志愿互助以及他们的健康赋能过程进行了长期的田野观察和民族志研究.研究发现癌症患者自组织是患者在确诊后健康赋能的重要途径和实践空间.患者之间的志愿互助促进了他们健康决策能力的形成,疾病管理能力的提升,以及通过自我效能感的重建实现心理重建和社会适应.癌症自组织中的健康赋能过程帮助癌症患者实现了改善疾病结果和生活质量的目标,在这个过程中他们不断实践着一种从客体健康到主体健康的赋权之路.

Abstract

Long-term field observations and ethnographic studies have been conducted on voluntary mutual assistance among patients and their health-empowering processes in cancer self-organizations.This study found that cancer patient self-organization is an important approach and practice space for health empowerment following diagnosis.Voluntary mutual assistance among patients fostered the development of their health decision-making ability,enhanced their disease management ability,and facilitated psychological reconstruction and social adaptation through the reconstruction of self-efficacy.The health empowerment process in cancer self-organizations helped cancer patients achieve the goals of improving disease outcomes and quality of life.Throughout this process,they continuously practiced a journey of empowerment from being passive recipients of healthcare to becoming active agents of their own health.

关键词

癌症患者/志愿互助/健康赋能

Key words

cancer patients/voluntary mutual assistance/health empowerment

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基金项目

2023年北京市社会科学基金决策咨询项目(23JCC130)

出版年

2024
医学与哲学
中国自然辩证法研究会

医学与哲学

CSTPCDCHSSCD北大核心
影响因子:1.314
ISSN:1002-0772
参考文献量6
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