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癫痫诊断延迟的原因及后果

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癫痫是常见的神经系统疾病,有证据表明癫痫是进展性疾病,既有发作性症状,又有慢性健康问题,如儿童发育迟滞,认知功能受损,生活质量下降等。早期确诊和有效治疗可以达到发作消失,改善生活质量,但由于多种原因诊断常有延迟。诊断延迟的原因:(1)延迟决定(由于患者及其亲属),不认为是发作或其他原因未就医;(2)延迟推荐(由于医生),全科医生未及时推荐至专科医疗机构;(3)延迟到达专家讨论;(4)其他因素。诊断延迟的后果:(1)不能及时得到正规治疗,形成难治性癫痫;(2)神经心理及精神的不良影响,如耻辱感等;(3)导致不正规的治疗;(4)儿童发育及认知受损;(5)因发作导致外伤;(6)受社会交往、教育及就业影响。
Causes and consequences of diagnostic delay on epilepsy
Epilepsy is a common neurological disorder.Evidence suggest that epilepsy is a progressive disease.Epi-leptic patients have both paroxysmal symptoms and chronic health problems,such as development retardation in children,cognitive function disturbance,and declined quality of life.Early diagnosis and effective treatment may potentially come up to disappearance of seizure and improvement of quality of life.Numerous causes may pose to the delay of diagnosis,in-cluding:(1)decision delay(by patients and their families),primarily attributed to failure to recognize seizure as events that required medical assessment or other reasons;(2)referral delay(by primary doctor).The primary doctor delayed re-ferral to a specified hospital;(3)attendence delay,to specialist review;(4)disarrangement of the medical procedure.Consequences of diagnostic delay included:(1)missing the opportunity for standard management and potentially becoming intractable epilepsy;(2)adverse neuropsychological and psychiatric effects,such as stigma;(3)resulting in nonstandard treatment;(4)developmental and cognitive impairment in children;(5)trauma due to seizures;(6)negative effects on so-cial communication,education,and employment.

EpilepsyDiagnostic delayQuality of lifeCognitive function

王薇薇、吴逊

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北京大学第一医院神经内科,北京 100034

癫痫 诊断延迟 生活质量 认知功能

2024

中风与神经疾病杂志
吉林大学

中风与神经疾病杂志

CSTPCD
影响因子:0.754
ISSN:1003-2754
年,卷(期):2024.41(6)
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