首页|残疾数据政策、标准体系与数据应用研究

残疾数据政策、标准体系与数据应用研究

扫码查看
目的 系统分析国际残疾数据政策和标准,以及残疾数据在政策制定、服务优化和社会包容性发展中的应用;明确国际残疾数据政策、标准体系以及残疾数据应用对发展残疾相关服务的重要性.方法 通过政策内容分析和数据标准体系的研究,探讨联合国(包括联合国统计司和联合国儿童基金会)、世界卫生组织、联合国教科文组织和国际劳工组织等国际组织的残疾数据政策架构、标准体系以及数据互操作性和融合的技术路径.结果 国际组织根据各自职责建立了残疾数据的政策架构,涉及数据与服务发展、数据标准、数据治理和数据应用等内容.国际社会建立了残疾数据标准体系,用于残疾数据的采集、编码、交换、互操作以及数据统计分析和数据融合与应用等领域.构建基于《国际功能、残疾和健康分类》《国际疾病分类第十一次修订本》等国际健康分类标准架构的标准化残疾数据标准体系,能够确保跨国的残疾数据政策一致性和残疾数据的互操作性和可比较性,进而推动建立基于数据驱动的残疾相关服务的发展,精确识别残疾人的服务需求,并优化服务供给,从而提高残疾人生活质量和社会参与度.结论 国际残疾数据政策和数据标准的构建与实施推动了残疾数据标准化、互操作性,随着大数据、人工智能以及区块链等技术在残疾数据中的应用,促进了在残疾数据领域的国际合作和跨行业数据融合,进一步推进了数据驱动的残疾服务的发展,确保残疾人平等享有服务资源的机会,提升了残疾服务的覆盖率和服务质量.
Research on policy framework,standards system and application of disability data
Objective To systematically analyze international disability data policies and standards,as well as the application of dis-ability data in policymaking,service optimization and inclusive social development,and to clarify the importance of international disability data policies,standard systems and disability data application for the development of disability-related services.Methods Through the analysis of policy content and research on the data standard system,this study explored the dis-ability data policy framework,standard system and technical path of data interoperability and integration of inter-national organizations including the United Nations(United Nations Statistics Division and United Nations Chil-dren's Fund),World Health Orgnization,United Nations Educational Scientific and Cultural Organization,and In-ternational Labour Organization.Results International organizations established disability data policy frameworks based on their respective mandates,in-volving data and service development,data standards,data governance,and data application.The international community established a disability data standard system for disability data collection,coding,exchange,interop-erability,statistical analysis,data fusion and application.Building a standardized disability data standard system based on the framework of international health classification standards such as International Classification of Functioning,Disability and Health,and International Classification of Diseases,Eleventh Revision would ensure the consistency of cross-national disability data policies,and the interoperability and comparability of disability data,promoting the development of data-driven disability-related services,accurately identifying the service needs of people with disabilities,and optimizing service provision,thereby improving the quality of life and so-cial participation of people with disabilities.Conclusion The construction and implementation of international disability data policies and data standards have pro-moted the standardization and interoperability of disability data.With the application of big data,artificial intelli-gence and blockchain technologies in disability data,international cooperation and cross-industry data fusion in the field of disability data have been promoted,further promoting the development of data-driven disability ser-vices,ensuring equal opportunities for people with disabilities to enjoy service resources,and improving the cov-erage and quality of disability services.

disability data policydisability data standard systemdata-driven disability services

杨亚茹、邱卓英、王忠彦、陈迪、杨剑、井淇、安娜、万甜甜、辛晓佳、刘晓芹、董原君、任祥霞、刘叶、田益凡、吕雪丽

展开 >

康复大学社会发展学院/国际康复政策和ICF研究中心,山东 青岛市 266113

世界卫生组织国际分类家族中国合作中心,北京市 100068

华东师范大学体育与健康学院,上海市 200241

中国康复科学所康复信息研究部,北京市 100068

山东第二医科大学,山东 潍坊市 261053

康复大学公共教学部、青岛市健康科技与产业政策研究基地,山东 青岛市 266113

康复大学山东省人口健康公共政策软科学研究基地,山东 青岛市 266113

展开 >

残疾数据政策 残疾数据标准体系 数据驱动残疾服务

2024

中国康复理论与实践
中国残疾人康复协会,中国医师协会,中国康复研究中心

中国康复理论与实践

CSTPCD北大核心
影响因子:1.354
ISSN:1006-9771
年,卷(期):2024.30(12)